Posted 07 November 2009 - 10:00 AM
Posted 07 November 2009 - 01:44 PM
My foot did that for a few months...eventually, it went away just like it came...I thought it was just plain weird...no further explanation I can help you with on that one even though I know exactly what you mean...
Posted 08 November 2009 - 12:02 AM
I had very sensitive skin when I first got sclero, I couldn't stand anything touching my arms and legs. I don't have that now and I put it down to being on the right drugs.
Hope you find something to help soon.
Posted 08 November 2009 - 01:04 PM
I had hypersensitivity affecting my hands, forearms, feet and calves at the beginning of my scleroderma. Everything hurt even blankets and I only dressed if I absolutely had to. It went away on its own thankfully but I did discuss it with a physio and she said that you can try to desensitise the area. You start slowly by touching the area with a soft fabric for a few minutes and work your way up to more coarse fabrics for longer.
It certainly seems to be quite common to have these hypersensitive areas for a period of time and I (a layperson with no medical training) blame the scleroderma for it.
There are medications that help with nerve pain and skin pain because yes there is such a thing!
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Posted 10 November 2009 - 05:42 AM
I see my rheumatologist on Thursday and will talk with him about it again.
Posted 20 November 2009 - 05:23 AM
That was January, this year. Like you, even the blankets and sheets were hurtful. Walking was the worst pain! I was prescribed Neurontin (Gabapentin-generic) for the electric nerve-like pain, and it has made a big difference.
Talk to your rheumatologist.
Posted 20 November 2009 - 12:07 PM
I am experiencing nerve/electric pains right now and get them frequently. I have this problem particularly with my lower arms.
I find it helps to dampen tea towels,put them in the freezer for 20 minutes then wrap around my lower arms for a short time. Obviously it is important to take care that they are not too cold but it certainly relieves the problem for me.
May be worth a try.
Posted 21 November 2009 - 09:39 AM