Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Lip Wrinkles


  • Please log in to reply
11 replies to this topic

#1 Sharon T

Sharon T

    Senior Bronze Member

  • Members
  • PipPipPip
  • 51 posts
  • Location:Thousand Oaks, CA

Posted 11 November 2009 - 10:38 AM

I have serious lip wrinkles (more like deep grooves around my mouth) which my doctor says are related to my limited scleroderma (CREST). Has anyone found anything that reduces the appearance of these? I may not be able to control the scleroderma symptoms, but I'd sure like to look better while suffering them! :closedeyes: ^_^
Sharon T.

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 11 November 2009 - 11:00 AM

Hi Sharon,

I'm sorry you have the scleroderma lip wrinkles. They can also be caused by aging or smoking, so they are a common problem even in people without scleroderma. (I mention that for people who stumble across this message just searching for problems with lip wrinkles and suddenly hit the panic button when they wind up on a scleroderma site!)

I believe in the fine art of distraction. For example, you could really play up your eyes with more eye makeup than usual. Or wear a brightly colored lipstick (although I've found a lip pencil is essential or the lip color will leak into the grooves). Even a delightfully bright scarf to draw attention to another area instead.

What they don't recommend is using things like Botox with scleroderma; that's a no-no as it can make a bad situation much worse.

See our section on Scleroderma Lips, which says:
Scleroderma Lips Deep lines around the lips worry many scleroderma sufferers but unfortunately collagen injections and laser treatment are not advisable as they may cause scarring. Tightening of the skin of the face may lead to microstomia - a small mouth. Facial and mouth exercises may help. "Disappearing lips" can be a very upsetting cosmetic problem and a reputable plastic surgeon may be able to perform an operation called a mucosal advancement.

**
But, my very best tip of all I've saved for last! Go look in a mirror with a normal countenance.

Now, put on a great big smile, the largest one you can manage.

Did you notice anything?

Disappearing lines!!

Furthermore, even if they don't entirely disappear, you can trust me on this one, absolutely no one else will notice or care. They will be entranced with your smile, and a great big smile is welcomed everywhere on earth.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 11 November 2009 - 12:56 PM

Hello Sharon

I don't have the wrinkles but my lips and mouth are smaller, not all bad as my mouth was rather large...based on what used to come out of it! :lol:

Anyways I notice, particularly the lips and it takes time, a lip pencil and lipstick to make me look the way I used to. The interesting thing is...no one noticed...not even family until I gave them a close up of my mush compared to a photo. My thinking now is that it doesn't look as bad to anyone else as it does to me so I don't intend to point it out. You know what it's like when someone says to you "oh look at my big nose" and you'd never really noticed it until they pointed it out and now you see it coming round the corner before the rest of the person and when they talk to you all you can think is "what a conk!". Same principle applies here I think.

Facial changes are a challenge there's no doubt about it but a big smile, as Shelley suggested, will do a nice cover up job.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 11 November 2009 - 01:10 PM

Sharon,

One of these days I think I'm going to put some before and after lips shots up on this site. What is left of my lips has deep vertical wrinkles just like you described. I've tried lots and lots of creams "guaranteed" to eliminate...blah, blah, blah - no success. I should have gotten my money back on all of them.

So, like Shelley pointed out - when you smile, they go away. So just keep smiling and no one will even notice them.
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 dustygal

dustygal

    Bronze Member

  • Members
  • PipPip
  • 10 posts

Posted 11 November 2009 - 06:38 PM

Sharon,

If you find the answer, I'd love to know. To be honest, I think nothing about scleroderma drives me as crazy as the deep vertical groove lines above what is left of my upper lip.

We all know smiling helps, but no one can smile all the time. I feel for you, but know that I am in the same boat. It's so frustrating...

Hope it helps just to know that I feel your pain.
:)

Dusty

#6 Sharon T

Sharon T

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 51 posts
  • Location:Thousand Oaks, CA

Posted 12 November 2009 - 10:04 AM

Well, the good news is, smiling does help, and I'm generally a pretty happy person! :D

I didn't even know there was a "scleroderma lips" section on this site - and I'm sad to say I don't know how to find a list of the various sections (hint, hint...could someone clue me in?). I'm glad I asked about lip treatments, because I was thinking seriously about trying collagen or botox; more good news - now I can spend my hard-earned $ on something else!
Sharon T.

#7 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 12 November 2009 - 12:57 PM

Hi Sharon,

Finding your way around the ISN Main site and the Forums is easier than finding the perfect lipstick! I'll get a topic started for it within the next couple of days with hopefully clear and easy to understand directions. Once you start exploring, you'll be hooked. It all starts with knowing how to use the search function. In the meantime, try clicking on any of the purple file folder tabs under the Sclero Forums label at the top of this page. If you click on Medical, a menu drops down and at the 2nd from the bottom is Scleroderma. Click on that and a new menu opens on the right side. Click on Scleroderma Symptoms (3rd from bottom) and see what you get. The 2nd from the top ought to be Dental/Mouth. Now smile. See what you get? Lots of smiles back.
Posted Image
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#8 ladyhawke

ladyhawke

    Silver Member

  • Members
  • PipPipPipPip
  • 120 posts

Posted 12 November 2009 - 04:22 PM

Scleroderma lips.....so THAT is what these are called....hmmmm....count me in too....sigh.....
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

#9 Patty LaFave

Patty LaFave

    Bronze Member

  • Members
  • PipPip
  • 21 posts
  • Location:Ravena, NY

Posted 12 November 2009 - 04:59 PM

Hi all, with me I haven't noticed so much of wrinkles in my lips, but I cannot smile like I use to. The skin around my lips doesn't appear thickened, I've always seemed to have a small mouth, and what I used to always complain about having backwards lip (LOL), but over the last few years I have noticed it is much more difficult to form a smile. Well anyways I still continue to try.

Patty

#10 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 12 November 2009 - 06:33 PM

okay, okay...I'm thinkin' body putty to fill in my wrinkles.

Count me in, three, Ladyhawke. I don't like it either and it's so exasperating!
I don't smoke and I'm a young..."only nearly 57" and I'm awfully defiante, when
it comes to things like this :o . However, my defiance isn't helping me out much,
in this department!lol
Anyway, I smile as much as my mouth will let me :P !
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#11 Buttons

Buttons

    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 610 posts
  • Location:UK

Posted 12 November 2009 - 09:54 PM

Hi Sharon,

I've got the dreaded lip wrinkles and a small mouth, my top lip is now very thin like others on here I've tried all sorts of cream etc. but nothing seems to help so I wear eye makeup to try to detract from them. I still have to find a way of wearing lipstick which doesn't make my lips worse. I have tried wearing different colours and using a lip pencil but I can't seem to get the line looking good - doesn't help with not having to good an eyesight for near things!

I like the just smile bit at least it's exercising those wrinkles.

Buttons

#12 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 13 November 2009 - 01:51 PM

We all sort of got a little bit off track here, discussing brand names and treatments that we are not certain are yet proven or recommended to help "scleroderma lips", so some of this thread has been laid aside, at least for the time being.

Our news team is researching more articles and abstracts to help guide us on this topic, so we can tread more sure-footed into it, in the future.

Thanks to everyone in this topic thread for your ideas and for mentioning things that we will look into more closely.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.