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Little toe problem

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3 replies to this topic

#1 summer


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Posted 14 November 2009 - 01:00 PM

I have been diagnosed with Crest/Limited Scleroderma for
about 3 years now. I don't have any skin issues, only tendon/joint
pain, Raynauds and internal thing going on.

For the last few months, I have been having problems with one of
my toes, the one just before the little toe. I don't have
any ulcers, but experience pins and needles followed by the toe
being red and hot to touch,and it feels like a sharp hot needle is
being pushed into it. This can last a few minutes or up to half an hour.
I also am not able to walk at all as the little bit of pressure standing
is excruciating. The only thing that helps is putting my foot on a very cold

I mentioned this to my Rheumatologist a few weeks back, and she mentioned
that it could be neurological and to increase my Amitriptyline. Well I have
done that , but the attacks are happening more frequently. I am not due to see
her now until after the holidays.

Has anyone else experienced this or something similar?.

Many thanks


#2 nan


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Posted 14 November 2009 - 05:31 PM

I too have CREST. I have experienced that type of pain in my toes. Mine hasn't been bad enough that I can't walk, but it is quite painful. Mine doesn't happen all the time. I don't really know what to tell you to do. I would definitely bring it up again with your rheumatologist.
Take care,

#3 Sweet


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Posted 15 November 2009 - 12:13 PM

Hi Summer,

What you are describing could be completely unrelated to your CREST. I would make an appointment with your primary care provider instead of the rheumatologist and get their opinion. It sounds like it's been going on long enough, that I would see if you can get down to the bottom of it.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 Amanda Thorpe

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Posted 15 November 2009 - 12:17 PM

Hello Summer

I'm with Sweet, see your doctor and do let us know the outcome. It's easy to put everything down to sclero but it may not be the cause here. I do hope you get some relief soon.

Take care.
Amanda Thorpe
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