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Having a hard time


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#21 Shelley Ensz

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Posted 25 November 2009 - 11:28 AM

Hi miocean,

I'm glad things are looking up a little for you, and that you get to take your trip to Florida.

When do you get to see the ENT, do you get in to see them before your trip?
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#22 Kamlesh

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Posted 28 November 2009 - 05:12 PM

Hi Miocean,

Events like Scleroderma has taught me many valuable lesions. Top of the list is “if I can not take care myself, I can’t help any one”. My psychiatrist kept on experimenting various anti-depressants (at least tried six or more) and nothing worked. Same way, I had to try so many sleeping pills before I could settle on Temazepam.

I tried to keep myself busy, I have full time job (indeed a stressful), I do yoga, breathing exercises, and go for long walks.

I do not expect anyone to help me or take care of me. I have tried to prepare for the worst.

In case I become disabled, I have taken long term disability insurance as well as long term care insurance.

First, you are very lucky to have your husband very supportive, you need to cherish the relationship and invest in the relationship, so minimizing chance of becoming him resentful.

Secondly, It is my experience that having a strong mindset helps a great deal in managing depression.

I hope this helps.

Take care!
Kind regards,

Kamlesh


#23 miocean

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Posted 30 November 2009 - 05:09 AM

Just wanted to let you know that I am feeling a little better. I am still having problems with my mouth and am waiting for a call from the dentist. It is doing a little better. I am still having trouble eating some foods, especially things that are crunchy But at least there is some improvement.

Georgio oz, What is your secret to keeping a positive attitude? You seem to have a lot going on yet seem to be in such good spirits. I'll look forward to hearing it.

miocean
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#24 Sweet

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Posted 30 November 2009 - 11:08 AM

Glad to hear you are doing a little better. :flowers:
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#25 miocean

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Posted 03 December 2009 - 04:46 AM

Just wanted to update you. I've made arrangements for a portable oxygen concentrator for my trip and have a number of a company in case I need oxygen there. I wasn't able to get an appointment with an ENT until after I return. My mouth still bothers me so something isn't right. It is a little better and not pinching quite as much but is still sore.

I am a wreck!! See my post on kidney transplant.
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