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My 8 year old daughter has linear/morphea

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#1 munstergirl



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Posted 18 November 2009 - 07:00 AM

Hi, I'm new. I have just come back from the hospital with my daughter who has linear morphea. I don't know much about it .The doctors want to put her on either these tablets methotrexate hope that's right or the UV rays.

She is only 8 but even in 3 months it has doubled and spread on her body very fast. Has if anyone heard of these tablets or using the UV rays? Please let me know.

Thank you so much so much,


#2 Jeannie McClelland

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Posted 18 November 2009 - 10:21 AM

Hi Angie,

Welcome to the Forum.  I'm really sorry your daughter has been diagnosed with morphea.  That's got to be tough on you, her, and your family.  Are any of her doctors scleroderma experts?  I think most of us feel that it is important to see a scleroderma expert, even if it is only as a consult.

We have a number of links that might be helpful to you and I'll give them to you below.  We also have members who have personal experience who will probably chime in.

So here come the links:

Methotrexate as a treatment for morphea
Phototherapy (UV, etc.)

and one on Methotrexate itself.

Please post as often as you like, ask any question that comes to mind, and let us get to know you.  I'm sending the warmest of hugs and very best wishes to you and your little girl.
Jeannie McClelland
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#3 Shelley Ensz

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Posted 18 November 2009 - 01:00 PM

Hi Angie,

Welcome to Sclero Forums! I'm sorry your daughter has linear/morphea scleroderma and send my best wishes to both of you. Look at the links Jeannie gave for some excellent information. And please be sure that she is seen by a juvenile scleroderma expert (if she isn't already).
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#4 Amanda Thorpe

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Posted 19 November 2009 - 06:16 AM

Hello Angie

Welcome to the forum although I am sorry your daughter has scleroderma, it's hard enough to deal with as an adult let alone as a child.

You've already been given excellent info and links so I'll just say keep posting and take care.
Amanda Thorpe
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