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Visit To Rheum'y A Scary One.

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6 replies to this topic

#1 Jersey-Itch


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Posted 03 February 2007 - 02:59 AM

Hi everyone. I haven't posted in a couple of weeks.

I went to a Rheumatologist yesterday who was very knowledgable, and seems to be an excellent practicioner. Even though I had to wait 2 hours to be taken ... :blink: ... it was worth the wait. He spent about an hour with me going over everything.

In a nutshell, he thinks I may have Wegener's Disease (even though my white count and red counts were great earlier last month). He's concerned about the symptoms I'm showing, and thinks that "this is only the tip of the iceberg". He said having Leuko Vasculitis for this long definitely isn't a drug or food reaction; it's systemic. The other possibility he's thinking is something likey "polyartelorisis" I know that's not the correct term, but it's something like that.

Next tests I have to do is a chest x-ray, and a visit to my eye doctor (my eyes seem dry --- they are red, which isn't all that uncommon though for me, and I've gotten conjunctivitis fairly often within the past couple of years).

My rash was pretty dormant, but he could still see the scaring and the other areas that were active.

Scary day.

#2 Heidi


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Posted 03 February 2007 - 04:12 AM


Thanks for the update. It sounds like you found a good doctor.....one who truly listened to you, took your symptoms seriously, and is willing to work with you to find out what is going on. I am sorry he didn't have more positive news for you, but I am glad he is ordering more tests and wants to figure out what is going on with you. Please do let us know how your appointment with the eye doctor and your chest x-ray turn out.

Warm wishes,

#3 LisaBulman


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Posted 03 February 2007 - 05:16 AM

Hi there,
Sometimes for the best we have to wait..... My general practitioner is the same way except I have never had to wait 2 hours! It sounds like you have a great dr now who is interested in your care and getting to the bottom of it. Keep them!
Please keep us posted on your test results!

Lisa Bulman
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#4 nan


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Posted 03 February 2007 - 06:07 AM

It sounds like you found a great doctor! I hope the tests come out ok. Take care,

#5 Piper


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Posted 03 February 2007 - 01:36 PM

Hi, I'm glad that you've found a Dr. that is getting to the bottom of things. That's half the battle, when they know what they are dealing with then they can treat you. Was it Polyarteritis nodosa that the Dr. said it could be, by any chance ? I'm familiar with that name because my aunt had it. I think it's a type of vasculitis but I'm not sure. I hope your tests come back positive.
Thinking about you.
Hugs, Piper

#6 Sweet


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Posted 04 February 2007 - 07:28 AM

Hey Jersey,

Sounds like it was a bit of a bittersweet appointment. It's always great to find a doctor you can relate with, one that will listen and explain things, one that is thorough and gets to the bottom of the issue, but then its scary finding out what the source of our problem is sometime. Try to take one day at a time, one step at a time, as time does allow us to adjust to any new diagnosis we receive. Sounds like you can rest assured that this doctor will take great care of you.

Keep us posted and keep your chin up.
Warm and gentle hugs,

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International Scleroderma Network (ISN)

#7 Jersey-Itch


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Posted 05 February 2007 - 10:19 AM

Thanks everyone!

Tomorrow I have a physical with my general practitioner and Thursday, my eye doctor is going to look me over too (I just got over conjunctivitis - another WG symptom - I've gotten a couple over the past year).

Yes, the other name was Polyarteritis (but he didn't use the other name).