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Starting a new medication

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6 replies to this topic

#1 waterview05



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Posted 03 December 2009 - 12:12 PM

Hi Everyone,

This is my second post and thanks for the supportive responses I received while in the intro forum.

I have diffuse scleroderma and my skin has been getting tighter by the day. I've been on plaquenil and colchicine, but no relief. My rheumatologist took me off the colchicine and tomorrow I am starting methotrexate.

I am hopeful that things turn around as I have been in so much pain from the skin compressing the nerves in my wrist and forearms.

Wish me well,
Kelly :thank-you:

#2 Cheryle


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Posted 03 December 2009 - 01:53 PM

Hello Kelly,

I hope the methorexate (MTX) will work quickly for you and end the nerve pain you are having.

Good luck!


#3 janey


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Posted 03 December 2009 - 05:31 PM

Methotrexate was the first medication that I was on and it did a great job in slowing the symptoms. It did take several weeks to notice the changes, but when it happened, it happened. I hope it's sucessful for you. If you need to read some study about it and scleroderma, click here: methotrexate.
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#4 Amanda Thorpe

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Posted 04 December 2009 - 03:09 AM

Hello Kelly

I've had a love hate relationship with the immunosuppressants I've been on. I started out with mycophenolate (Cellcept) and got on exceptionally well until month 10 when the dreadful headaches began, a side effect unfortunately. I persevered for many months but gave up eventually. After about 4 months off the mycophenolate I started methotrexate and again at first found it great but then I stopped taking it after about 3 months because it made me so tired (I think). Well I'm now back on it and am hoping I'll have excellent results like Janey and hopefully you will too.

Take care.
Amanda Thorpe
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#5 Peggy


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Posted 04 December 2009 - 05:07 AM

I so hope you have good luck with it. I'm on methotrexate to see if it can help with the terrible muscle pain. Well it's been a number of months and when I go back in January I plan on telling him it isn't doing anything. I also take cellcept and it has really helped loosen my skin and hopefully it's helping my lungs which get worse each time I do my PFT's. I guess I'll see if that's the case in January too. I unfortunately think I'm at the end of what they can try for me so the pain I have is something I think I'm going to have to live with. I wish you luck.

Warm hugs,

#6 Sweet


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Posted 04 December 2009 - 12:53 PM

Hi Kelly,

I have heard a lot of positive results with this medication, so I hope it really helps you.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#7 Shelley Ensz

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Posted 04 December 2009 - 06:05 PM

Hi Kelly,

I hope you find the methotrexate helpful!

In the meantime I'll try to wave my magic wand, see if it makes you a bit better. :fairy:

Did it work?

Oh, please tell me it isn't broken, as they are fresh out of them at my local magicland discount store.
Warm Hugs,

Shelley Ensz
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