3rd Different rheumatologist appt.
Posted 10 December 2009 - 07:45 AM
Hope you guys are doing good and having productive days....I FINALLY had one!
Posted 10 December 2009 - 08:49 AM
It's nice to find that there may be light at the end of the tunnel at last!!
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Posted 10 December 2009 - 09:40 AM
I'm from Atlanta too. I'm very new to all of this (hadn't heard of scleroderma until a couple weeks ago). My first Rheumatologist appointment is on Tuesday, and it's down on the south side of Atlanta because that's where I used to live and it's who my doctor recommended. Since I haven't been yet, I don't know if I will like them there or not. Did you like your Rheumatologist at Emory?
I hope you find some answers soon!
Posted 10 December 2009 - 10:35 AM
I am also going on my 3rd rheumatologist. I have switched because as symptoms are progressing I am now going to a large center. Sounds like you are also.They all have confirmed that I probably have CREST, and probably other stuff, etc. Somehow I am looking for a definitive answer. It sounds like you are struggling with the same kind of thing. My ANA is high but other blood is ok. That and the centromere pattern in addition to symptoms is the basis of their suspicions. I'm not sure why it will help to be definitively labelled-somehow it just does. Hopefully you will find all of your answers at the specialist. You are right to keep on them if you don't get that referral. I think so often as helpful as they try to be, some doctors see such extreme stuff that unless you are on your last legs (especially if you look healthy)they are reluctant to really look closely at symptoms and diagnose. It sounds like your bloodwork was fine so does that mean your symptoms are nothing? I am just a person who prefers black and white answers but this autoimmune stuff is hard to define.I do think it helps to post and see what others have who are experiencing the same symptoms. If nothing else, it adds to your education to ask better questions or rule out stuff. Good luck with everything. I am out there in the same boat.
Posted 10 December 2009 - 10:43 AM
Posted 14 December 2009 - 11:55 PM
Posted 15 December 2009 - 05:15 AM
Barbara aka relicmom1
Posted 15 December 2009 - 08:16 AM
I see Dr Jonathan Waltuck at Emory. He is very good and likable as well. He was recently listed as one of Atlanta's Best 100 Doctors; chosen by other Medical Professionals. As far as the other male Dr there, don't even waste your time ....
How did your appointment go on Tuesday?
Posted 15 December 2009 - 08:40 AM
Yes this is a good day....my appt. at the SCLERO CLINIC in Birmingham is scheduled for Jan. 26th. I've heard good things about this research sclero clinic so I am hoping for a definite diagnosis. Good luck with your doctor!!
Posted 16 December 2009 - 07:21 AM
The appointment yesterday went fairly well. I liked the rheumatoligist a lot - she seemed very determined to figure out what the problem is. She said she was not convinced either way that I did or did not have scleroderma, though she seemed fairly certain that it is autoimmune. They are re-doing the bloodwork and she sent me for a chest x-ray yesterday. There are several other tests she would like to schedule. The one odd thing is she was testing my muscle strength by pushing against a limb and I was supposed to resist. It was like I literally wasn't trying. She said her main concerns were that, the frequency of my heart palpatations, and lung function. I'm anxiously awaiting results and more scheduling so we can find some answers!
Posted 16 December 2009 - 12:47 PM
Posted 16 December 2009 - 12:49 PM
Posted 17 December 2009 - 06:25 AM
Posted 20 December 2009 - 02:41 PM
Sounds like this doctor is a good one, wanting to do several tests.
When you said you were to push against her, it was literally like you werent't trying did you mean you could not; that you didn't have strenght to do it?
Let us know as your test results come in.
Hoping for the best!
Posted 21 December 2009 - 06:51 AM