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need to find Sclero doctor


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#1 bookworm

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Posted 10 December 2009 - 11:57 PM

Can anyone recommend a good Sclero specialist or rheumatologist in Austin, Texas who is familiar with Sclero? I have a friend who has a friend in Austin who has just been diagnosed with CREST. She has two black finger tips and her doctors want to amputate. Naturally all here family is upset and needing information. I gave them this website address, but I'd like to name a good doctor. I looked at the list and no one is listed in Austin. Maybe someone knows a good one, either there or near there.

Thanks
Mary in Texas

#2 Shelley Ensz

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Posted 11 December 2009 - 03:34 AM

Hi Mary,

It's nice that you're trying to help out your friend's friend. I'm sorry she has two gangrened fingertips and send my best wishes to her. It certainly does sound like she truly needs to be under expert care!

What you're going to run into is that there are only a few dozen scleroderma centers in the U.S., because scleroderma is such a rare disease that most practitioners might only see one case in their entire career -- and then, they are quite likely not to recognize it, even when they see it.

So you will want to see our Scleroderma Experts link but particularly the SCTC listing. The center in Houston is one of the handful of major world centers.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 bookworm

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Posted 11 December 2009 - 10:40 AM

Thanks Shelly.

I did look at that list, but was hoping someone out there might actually live in or near Austin. I live near Fort Worth and I have a wonderful doctor who knows Sclero and treats several CREST patients even though Fort Worth doesn't have a major Sclero center. My doctor consults with the center in Houston.

If someone has a good doctor like this, only in or near Austin, I'd love to have his or her name.

Thanks,

Mary in Texas