Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Calcinosis


  • Please log in to reply
7 replies to this topic

#1 sarasmile

sarasmile

    Bronze Member

  • Members
  • PipPip
  • 14 posts
  • Location:Atlanta, GA

Posted 11 December 2009 - 12:02 PM

My primary doctor diagnosed me with scleroderma, and I'm about to go to my first rheumatologist appointment. However, being the curious person I am, I would prefer immediate answers.

I have a small bump on my thumb. It's been there for several months. It's just barely tinted white and looks like an extremely small blister. I tried looking up pictures of calcinosis, but they were just horrifying pictures of really bad ulcers. Trying to stick to my resolution to not freak myself out with this whole disease, I promptly stopped looking at pictures. What do the milder cases look like? Would it be normal to just have one bump that doesn't progress? I've also never been one to crack my fingers (I don't think I even could if I tried), but this thumb cracks several times a day now. Related at all?

Thanks for helping with my curiousity,

Sara

#2 piperpetpete

piperpetpete

    Senior Bronze Member

  • Members
  • PipPipPip
  • 45 posts
  • Location:Atlanta, Ga.

Posted 11 December 2009 - 04:37 PM

Sara,
I don't have any of those but wanted you to know I sent you a private message abt Emory. Check your inbox.

#3 enjoytheride

enjoytheride

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 367 posts

Posted 11 December 2009 - 05:42 PM

For me there are two basic appearences. One is a usually small round area of white that feels like a hard little knot. Eventually comes to the surface and gets bigger.

The other type seems to be a thickened area that has no white for quite awhile and widens slowly. Then it reaches a point where it shows white in several small points of the thickenings. The white gradually grows and eventually reaches the surface- subsiding a bit then reappearing for months. I have yet for them to go away- I don't think they do.

For me they hurt when they put pressure on a nearby nerve or joint or just as they come to the surface or if exposed to real cold. Otherwise they are just kind of thick areas. You're on your own with the popping joints- I have that in area not showing calcification but I take large amounts of vitamin D which helps with that.

:fairy: Let me know if you find a good way to deal with them.

Best wishes.

#4 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 11 December 2009 - 06:05 PM

Hi Sara,

I can only speak for my own experiences and I am in no way an expert on anything but I have had only one finger affected with calcinosis. I showed my rheumatologist and she said that was what it was. It started out as a tender spot then a hard little scabby-like sore and I finally dug out a tiny rock hard piece about the size of a grain of minute rice. It still spits out something about every 6 months or so and always starts with the tenderness.

I have also developed what may be more calcinosis on the edge of my lower lip. I am about ready to perform surgery myself to get it out! It is the size of a bb and noticable!!

You have a good resolution there. Stick to it if you can. :(

Take Care, :bye:

#5 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 641 posts
  • Location:Auckland, New Zealand

Posted 11 December 2009 - 09:46 PM

Hi Sara,
I have CREST and have done for 40 or so years. At one time in my 40's I used to get odd little blisters on my fingers which seemed to be filled with milky liquid, they got quite sore sometimes and I would pop them and they would go away but another one would pop up in another spot. I also had some "gravel" under the skin of my elbow which my general practitioner at the time would not touch. However, me being me, couldn't leave it alone and dug it out with a needle!! It was just white gravel and after that I have had no trouble. I think now that those things were the Calcinosis part of my CREST and for me that part of the syndrome has been almost a non-event. This only lasted for a couple of years and then it was gone. From what my general practitioner says, some people have lots of calcified lumps all the time and others don't, and that is what this disease is like everybody has different manifestations of the same things. I can't say the same about Raynauds, GERD, bowel incompetence, and vascular incompetence so we just have to deal with we are given and be thankful for the absence of other things.
Good luck and be brave - girls can do anything!!
Judy T

#6 Lucy H

Lucy H

    Bronze Member

  • Members
  • PipPip
  • 18 posts
  • Location:new england

Posted 12 December 2009 - 05:47 AM

Hi Sara.
I know what you mean about looking at pictures and seeing awful looking things. It seems as though they are all extremes of whatever the condition is. To answer your question, I also have 1 very small whitish hard bump on a finger that just arrived about 3 weeks ago. It has not changed at all. Just hard and white. I believe it is a calinosis but am not 100% sure. It is not like anything else I have ever seen- not a blister, not a callous which makes me strongly believe it is actually a calinosis. I also have mild callous like skin forming around some of my nails, kind of like cuticles gone wild. Not obvious to anyone else but I can tell. Hope this helps.

#7 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 641 posts
  • Location:Auckland, New Zealand

Posted 12 December 2009 - 10:29 AM

Hi,
Don't tell me about cuticles gone wild!!!! I spent a fortune with a Skin Specialist in the 1970's trying to work out what infection I had in my cuticles, in the end I just gave up and let them grow half way up my nails if they wanted to!! Now I know that it is the part of the nail bed problems lots of us have. I tried keeping them soft with cutlcle creams but that just seemed to act like fertiliser on the garden - it made them grow faster. Now I just accept that they,re weird and go regularly to a Beauty Therapist and she does my eyebrows and cuticles every few weeks. This is one of the things that has NOT gone away over the years but as usual, I say it could be something worse.

Judy T

#8 sarasmile

sarasmile

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 14 posts
  • Location:Atlanta, GA

Posted 12 December 2009 - 12:42 PM

Thanks everyone for your replies. Mine doesn't hurt at all, it's just there, so I'm not really sure if that's what it is or not. But I'll definitely ask on Tuesday to make sure!

-Sara