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Cystoscopic Examination


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#1 kathygirl

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Posted 22 December 2009 - 06:40 AM

I was wondering if anyone has had this procedure. I read on the internet that usually the doctor uses a general or local for pain while doing this. My doctor said he uses nothing. It is the first time using this urologist. Our first meeting was no longer than 3 minutes. I am trying to find a different doctor but may have to go with him.

I took cytoxan for 18 months. I have been off it for nearly 1 year. I am having blood and large blood clots in my urine. Sometimes I have severe pain while peeing for several hours then it goes away. Anyone have any thought on what this could be?

Thanks,

Kathy

#2 Shelley Ensz

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Posted 22 December 2009 - 07:02 AM

Hi Kathy,

I have frequently had cytoscopic examinations in my urologist's office, without anything for pain. Whatever pain there might be during the exam (sometimes this is really choice for me, as I have interstitial cystitis) is only temporary, there is no residual pain and the exam is very fast. They just want to get a quick peek, to see if there is something that might require medical or surgical treatment.

My guess is they want to see if the issue is primarily with the urethra or with the bladder itself, or both. It's when they do the actual procedure (like bladder biopsy, fulgeration or distention) that you want to have anesthesia. Those procedures are usually done with outpatient (day) surgery.
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Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#3 kathygirl

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Posted 22 December 2009 - 11:31 AM

Thanks Shelley, makes me feel better. One time I went to a dentist and asked if the root canal I was scheduled for was going to hurt. He said it never hurts. He lied.

#4 Avalanche

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Posted 23 December 2009 - 06:05 AM

Hi Kathygirl,

I recently had one. The urologist put some numbing gel on the urethra, but she said mine was tucked in, so it did hurt, and wasn't too fun when she filled the bladder and looked around, but it didn't last long.

I had some residual discomfort- not pain though, and all was back to normal. If you're built normally, it will probably be fine!

#5 Amanda Thorpe

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Posted 23 December 2009 - 07:10 AM

Hello Kathygirl

I have interstitial cystitis (IC), a small bladder and a narrowed urethra all of which make me wary of any procedure that does not include anesthetic. Even bladder instillation's by catheter, for the IC, were painful despite the use of child sized catheters. Many years ago I had to have an ultrasound, to rule out any other causes of frequent urination, for which I had to have a full bladder. Let me tell you it was awful, I couldn't keept it full and would never have one again.

I guess that if you're normally built, to quote Avalanche, it's okay because they obviously do lots of the procedure without anesthetic. Also without anesthetic you can walk in and walk out without having to come round and recover.

As you can tell from reading this post, as opposed to Shelley's who also has IC, I am a whimp, a whiney whimp at that and I've no doubt you'll soon be posting about how smooth the procedure went for you.

Take care.
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#6 ozzy69

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Posted 23 December 2009 - 11:16 AM

Hello Kathygirl,

I too have interstitial cystitis (IC). They did a hydrodistention to comfirm it. I was put under for it and woke up in pain. That was in 2006. My main problem with the IC was pain. I still do have flares but have it under control for the most part.

Hope you feel better!

Nina

#7 kathygirl

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Posted 23 December 2009 - 12:15 PM

I guess I will find out if I am built normally or not. can't wait for it to be over. Thanks everyone

#8 Peggy

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Posted 23 December 2009 - 12:27 PM

I have interstital cystitis from the cytoxan and I've had this done. I wasn't given anything for the pain and it wasn't painful. It was uncomfortable, especially when they filled the bladder, but it didn't last long. The worst pain was from the cystitis so when you say you have pain when urinating I know what you're talking about. It's because of the cystitis I'm not able to take the cytoxan anymore. When I was taking the cytoxan I didn't drink enough water for the kidneys so I believe that's why I developed the cystitis.

Warm hugs,
Peggy

#9 Shelley Ensz

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Posted 23 December 2009 - 02:23 PM

Hi Kathy,

At best, it will just be uncomfortable. At worst, you'll end up with impressive bladder spasms right on the spot, as has happened to me several times. But, if you have things like interstitial cystitis, then you are already accustomed to tons of bladder spasm pain, day and night. So that raises the bar for anything called "pain"; it is all so relative, even relative to how we've been feeling overall and how well we slept the night before.

Amanda, you are not a whiney wimp; it is more like I was under-exaggerating. Maybe I was trying to comfort Kathy a little, or reassure that it probably wouldn't be out of your mind, uncontrollably painful for a long time. But that's okay as now we've all become distracted as to wondering whether or not she is built normally (thank you, Avalanche!) that she won't even feel the pain, she'll just be focused on asking whether she is built normally and that will really get the doctor wondering what's going on.

So anyway, Kathy, never believe any medical professional (and especially not me as I have no medical training at all) if they ever tell you anything won't hurt. There can be psychic pain involved even when there isn't physical pain. What they normally mean by that, I think, is that they have been somewhat successful, so far, in peeling the patients off the ceiling and that they haven't lost too many of us due to the procedure's pain factor alone. :sick2:
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#10 enjoytheride

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Posted 23 December 2009 - 04:22 PM

When I read your post, I was going to reply that I had one and I can remember saying to the doctor when it was over that for once a doctor was right when he said it wouldn't hurt. Being that I always believe that when they say it won't hurt, they mean it won't hurt them. :happy1-by-lisa-volz:

But I did not have a painful problem to start so I think that might make a big difference.

Anyway- I hope it's fast, easy, painless and successful. :fairy:

#11 smac0719

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Posted 28 December 2009 - 01:26 PM

I had a cystoscopy in October and my urologist used a numbing gel. I too was nervous and read that an anesthetic is used, but my urologist said it's such a quick procedure they don't use anything else besides the gel.

I really tried to relax while they inserted the scope and that helped. He wanted me to look at the screen while he was "looking around" and I just wanted him to finish. I experienced a little burning with urination afterwards. They gave me an antibiotic immediately aftwards and some pills to help with the burning.

Good luck!
I may have Scleroderma, but Scleroderma doesn't have me!