Posted 23 December 2009 - 06:41 AM
Posted 23 December 2009 - 06:51 AM
I actually do experience that, but primarily in my neck, arms, hands and fingers. Sometimes in my thighs. There could be so many reasons why you are feeling this, and it might not be Sclero related. Mine is due to two reason, severe advanced degenerative disk disease in my neck, and also to thoracic outlet syndrome. If it continues, I would bring it up with your doctor.
Posted 23 December 2009 - 07:55 AM
I had pins and needles in my right foot when exercising and in my left shoulder from just sitting still. This was before I was diagnosed and now I don't get either, mind you I don't exercise now and don't sit as much as I'm usually sleeping!
Pamela's right though, it could be anything so mention it to your doctor and of course let us know what it is!
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)
Posted 23 December 2009 - 10:45 AM
My pulmonologist always asks me if I've had any tingling sensations, but I never have so I've never asked what they are related to! Since he started asking before I was diagnosed with scleroderma, my guess would be that the tingling is related to my interstitial lung fibrosis. Could be lots of other things too, I'm sure, since nothing is really simple when it comes to autoimmune issues
Posted 23 December 2009 - 11:09 AM
Posted 23 December 2009 - 11:21 AM
I too get that pins/needles feeling in my feet and arms. I get it in my arms when I am laying down. I get it in my feet when I am sitting for more then 15 min. or when I first start exercising. It will last about 10 or 15 min. until my body gets warmed up. I do a dance exercise class and try to lift some weights each week. I have asked my doctor but I never really got a response. It is very annoying at times.
Posted 23 December 2009 - 11:52 AM
I have the tingling off and on but I don't exercise like you do as I can't. I have constant terrible muscle pain in my legs and arms and if I do increased activity it makes the pain even worse.
I would definitely bring this up with your doctor at your next visit. I have no idea why we get this and whether it's related to the sclero or if it's from my polymyositis. I don't see my neurologist much anymore as most of my health care is now done through the rheumatologist and the accompanying doctors for the kidneys, lungs, heart and esophagus.
Posted 26 December 2009 - 09:16 AM