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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 tngrits

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Posted 23 December 2009 - 08:45 PM

Hi to my sclero friends. I have been looking for a good, informative place to talk and to learn from others. I used to belong to another famous group but they worked so hard at getting much needed donations they seemed to forget the much needed support system. I know it is possible to do both. Your site seems to be a great site and I can't wait to start meeting people from all over the world. I have had the CREST form of scleroderma for about 20 years now. I am one of the lucky ones. It is progressing slowly. I have many other health problems also but am at a point that I need to know the latest on scleroderma.

#2 Sheryl

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Posted 24 December 2009 - 02:20 AM

Welcome tngrits to ISN forums. Now, your forum forever more or for as long as you need fulfilling or wish to offer fulfillment to others. We have a great group of staff, and friends that feel like family. I take that back. They make you feel better than our own families most of the time. Our real families don't have a clue what we deal with day to day and week to week. They don't know how to give support or help us through a painful day. Here, someone will jump in and make you smile, or laugh and tell a special story that makes you feel how lucky you are and, how important it is that we still wake up every day and face this beautiful world that we live in. It is great having you join us.
Strength and Warmth,
Sheryl

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#3 Sweet

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Posted 24 December 2009 - 04:47 AM

Hello tngrits

Welcome! I'm so very glad you've joined us. I too have CREST for the past 10 years. You've come to the right place for information, support, and good ole friendship. I'm really glad you joined us, and I look forward to knowing you better.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Joelf

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Posted 24 December 2009 - 09:29 AM

Hi tngrits

Welcome to the forum; I too have Limited Sclero and was diagnosed last July.

I look forward to reading your posts. :)

Jo Frowde
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#5 Amanda Thorpe

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Posted 24 December 2009 - 12:08 PM

Hello Tngrits

Welcome to the forum, you're in the right place for all things sclero!

I always find it encouraging when people have had scleroderma for a long time, I am into my 3rd year with diffuse. It's been an interesting journey that's for sure!

Take care and keep posting.
Amanda Thorpe
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International Scleroderma Network (ISN)

#6 Shelley Ensz

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Posted 29 December 2009 - 04:02 AM

Hi Tngrits,

Congratulations on graduating from the Welcome Forum recently! I am just moving this thread into the Main Forum now.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#7 tngrits

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Posted 29 December 2009 - 04:33 AM

Thanks Shelley. I am thoroughly enjoying my time here. Very nice people.

Linda