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Calcinosis?


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#1 ozzy69

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Posted 24 December 2009 - 01:06 PM

Happy Holidays everyone!

I have been having problems with my right hand fingers ever since it has gotten cold again. My index finger and middle finger are a lot more swollen then my other fingers. I have about six bumps about the size of a pea on my index finger. it is sore & red.. Something when my Raynaud's is acting up the bumps show up white. Could this be Calcinosis? Does calcinosis only come with the crest? I was told by my doctor that she believes that I have diffused sclero. I have taken a couple pictures and I will post them. I do have a doctors appointment in Jan.

NinaPosted Image

#2 truman

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Posted 24 December 2009 - 08:17 PM

Yes, it's calcium deposits. I have them on my feet, arms, ears and now thumbs. I was just at the doctor about this today. Thing is that once the little rocks pop out, they fill up again. Just one of the perks of this disease.
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#3 Amanda Thorpe

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Posted 26 December 2009 - 08:57 AM

Hello Nina

According to the UK Scleroderma Society booklet Understanding & Managing Scleroderma about 42% of people with limited sclero develop calcinosis to 17% of people with diffuse.

We have a page on calcinosis that includes a picture. According to the information: Generally, there is no treatment required for calcinosis, although surgical excision is sometimes done for extensive or very painful calcinosis. Unfortunately it also says: no treatment has convincingly prevented or reduced calcinosis.

No doubt others with calcinosis will chime in with many handy hints and useful advice for dealing with calcinosis.

Take care.
Amanda Thorpe
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#4 ozzy69

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Posted 27 December 2009 - 03:33 AM

Thanks Truman & Amanda,

I have read about Calcinosis before but I was not sure if that what it was. Does the cold weather seem to bring them out more?
Hope everyone had a Happy Holidays & a Happy New Years!

Nina

#5 enjoytheride

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Posted 27 December 2009 - 08:37 AM

Hi Ozzy- I haven't found that it makes them worse (Ithink because they do progress slowly) but it certainly makes the ache more.