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Embarrassing question

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#1 tngrits


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Posted 24 December 2009 - 08:02 PM

:blush: I was wondering if anyone else has a problem with diahrrea. I have had trouble for a while now but it has gotten much worse. I get diahrrea within 15 minutes of eating and it does not matter what I eat. I am going to have a colonoscopy soon so maybe they will find out what is going on. Of course I worry it could be the scleroderma affecting my intestines. It is driving me nuts.

#2 Sheryl


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Posted 25 December 2009 - 01:33 AM

tngrits, some of us suffer with the ongoing diarrhea problem. Mine is caused mostly from bacterial overgrowth. Even when that problem is cleared up I still have problems and I am on medication twice daily to help with the situation. I need to eat additional fiber and that seems to help also. If you are going for a colonoscopy your doctor will be prepared to start you on medications to clear up your bowels and destroy the bad bacteria and start you off with better flora in your system. I still have problems a few times a year and we go through a regime of antibiotics. Then I take over the counter probiotics to help with the flora in the intestines. It is good that you are getting this taken care of. Matters could become much worse if you don't take every precaution. Others may respond soon.
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#3 enjoytheride


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Posted 25 December 2009 - 11:07 AM

Well if you can't ask your fellow sclerodermites (?) who can you ask?
Are you taking any meds that could cause this? Something to which you might be especially sensitive?
Right now, I'm having the exact opposite problem so I have really no personal insights to offer.

#4 Amanda Thorpe

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Posted 26 December 2009 - 07:03 AM

Hello Tngrits

Congrats on moving to the main forum!

Let me tell you that any embarrassment you feel about bowel problems will soon disappear because it is a very common sclero issue. People can either have diarrhea, constipation, a combo of both and/or leakage so the possibilities are endless!

That you are going to have a colonoscopy is a good thing because you will at least know what is causing it. I had one many pre sclero years ago and it didn't really go all that well. You see I had a sedative that was offered thinking I'll just wake up when it's all over but what I actually did near then end of the procedure was to wake up, shout expletives at the doctor and nurse insisting they stop. I had no recollection of doing this and was told about it by the doctor afterwards who thought it was very amusing!

The best bit about the procedure though is the bowel prep you have to do the day before, you take a solution that cleans everything out and if you think you have diarrhea now you ain't seen nothin' yet! :lol:

Seriously though bowel issues are not very nice to deal with, when I started having problems, I have the opposite issue to you, I cried because I knew it was here to stay and it was one more "normal" thing taken away by scleroderma. Now it's just another symptom to be managed and shared with other sclerodermians who know exactly what I'm talking about!

Please keep us informed and remember you are right at home here.

Take care.
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#5 Margaret


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Posted 26 December 2009 - 02:58 PM

Hi tngrits....welcome to the group. My son has on and off again diarrhea.

It's a bit funny that this topic should come up now since Gareth is going in Monday for his first colonoscopy. He's been having bleeding for the past 2 weeks and his gastro doctor wants to rule out antyhing to do with sclero/UCTD. Thanks for the 'heads up' on the diarrhea, Amanda. I already got a package of Depends for him since someone else warned me about that. Tomorrow should be a fun day (not) since I don't think he really understands the fact that he can't have food....ANY food tomorrow.

Take care, Everyone.

#6 eah


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Posted 26 December 2009 - 04:59 PM

Please try not to be embarrassed. I had this problem for a few years. I lost a lot of weight. I was hospitalized for uncontrollable diarrhea. I was put on antibiotics for supposed bacterial overgrowth. I was later tested for nerve problems. They eventually put me on a low dose of elavil, lryrica and lomotil. It was due to sjrogens from the scleroderma that I got the nerve problems. Everyone is different and responds differently to medications. I do hope your feeling better soon and that you find something to bring you some relief. I know that it is not easy. Please feel free to e-mail me personally if you need to talk.

#7 tngrits


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Posted 26 December 2009 - 07:22 PM

Thank all of you for your replies. I have IBS but have wondered for the last year if this was due to scleroderma. The IBS has never acted up constantly like this. I already see this is going to be an informative but fun place. Thanks so much for the info on preparation for colonoscopy! I was laughing just reading about Amanda's experience---sorry, could not help myself. I will let you know when I have the test and get the results.

#8 Joelf


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Posted 27 December 2009 - 02:26 AM

I feel very sorry for those of you with bowel problems; not only is it very unpleasant but not a good subject to mention in company!! ;)

Thankfully I don't seem to have got the Sclero gut involvement - at present! - but the anti-sickness medication I was put on when I had IV Cyclophosphamide made me very constipated. :(

The very best thing I found were stool softeners; they do take a while to work so I would take 3 a day a couple of days before I had the infusion to keep everything moving along satisfactorily and I found they worked a treat!! ;)

Possibly too much information!! ;) :lol:
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#9 professor plumb

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Posted 27 December 2009 - 12:08 PM

Hi tngrits
I know just how you feel having had Scleroderma linked diahrea (sorry I can`t spell it) for about 15 years.I have had a sacral nerve stimulater fitted in 1999 and it has been a great help although not a total cure. I don`t think people who have not had this problem appreciate the stress and worry it can cause just to go out for a short while.I hope you are in good medical hands and they find a way to help you.Keep smiling :bye:

#10 tngrits


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Posted 27 December 2009 - 12:30 PM

Thank you and welcome Professor Plumb. Love the name! I am new here also and it seems to be a great place to learn and talk to others with the same problems. Yes, I have the same problem when I am out. I usually make sure I do all my errands before eating anything. Then I look for the nearest bathroom. Hoping they can do something for me after my colonoscopy.
Thanks again for replying. Hope you enjoy the forums as much as I do.