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#1 willow


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Posted 06 January 2010 - 08:04 PM

Friends, what do you do when the pain is driving you to tears and you can't sleep? I have this piercing pain in the ends of my fingers and toes and my pain meds are having very little effect on it. I feel like there is a thumbscrew on my big toenail and it just keeps tightening down more and more. This has been going on with no letup for many days now. I went to bed exhausted earlier tonight but I finally just got back up because laying there just makes me more aware of how BAD it hurts and nothing to take my mind off of it. I just don't know what to do with myself.

#2 bookworm


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Posted 07 January 2010 - 10:48 PM

Hi Willow,

I was on my way to bed when I read your post and I just wanted to say that I have been there, with the pain. My pain was in a finger ulcer but NOTHING helped it until I was finally sent to a really good pain management doctor, who apparently knew a thing or two about Scleroderma!

It has taken a bit of time, but I have gathered about me several doctors who seem to know what they are doing, and I have several prescriptions I take daily for pain and several I keep for really bad pain.

It's almost morning, so I think I'd better go, but keep trying to find help and medicine that works for you. Change doctors if you need to. Don't give up!!

More later!

Mary in Texas

#3 Amanda Thorpe

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Posted 08 January 2010 - 10:14 AM

Hello Willow

I am really sorry you're going through this right now. I wouldn't just assume it's because of the scleroderma, I think you should see your doctor just in case.

Should it turn out to be the scleroderma you may want to consider asking for a referral to a pain management clinic, as already mentioned, because they won't just consider pain medication which is already not working for you. I get shooting "electric shock" type pain in my ankles which is now considered to be neuropathic pain, I take amitrptilyne for it and it helps. Amitriptilyne is an anti depressant drug that turns out to be good for nerve pain. You need a doctor to think outside of the box.

Whatever you do don't think you just have to put up with it see your doctor(s) now. In the meantime we do have a page about pain management that may be helpful.

I hope you get some relief soon and take care.
Amanda Thorpe
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#4 barefut


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Posted 10 January 2010 - 06:02 AM

Hi Willow,

Great advice from Bookworm and Amanda, I have nothing more to add except that I really feel for you. Take care and I hope you find relief very soon!!!

#5 bookworm


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Posted 10 January 2010 - 09:13 PM


Are you feeling any better? I hope you will get hold of a good doctor tomorrow -- preferably a pain management doctor.

I have an appointment with my rheumatologist tomorrow and I am so hoping she can help me with the pain I am having in my right elbow. I am just about out of strength and endurance. I have some good pain meds, but when I am on them, I can't accomplish a thing! I'm just too groggy, Add that to the fact that I am so fatigued all the time, and all I do is sleep!

Still, I'd rather be sleeping than hurting! I'm sure yu know what I mean! Good luck tomorrow! Make up your mind that you will get some help with this. Don't give up!

Mary in Texas