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Did you know that exercise increases inflammation in systemic sclerosis?


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Can't Get Up!


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#1 barefut

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Posted 15 January 2010 - 02:18 PM

Oh man I have never felt this pain before. It started last night and today I can barely walk! My hips, knees, ankles, elbows and wrists each have the same weakness and pain. My cane isn't much help since my elbows and wrists are affected - I don't have any strength to push myself up. I only hurt when I move, or bear weight on my joints, nothing looks swollen....what is happening to me?

Getting up or in/out of the car is an ordeal but once I am up and moving around for about 10 minutes, it's better.

I emailed my rheumatologist this afternoon and if I'm not better by Monday I'm going to make an appt with her - not looking foreward to a 2 1/2 hour trip to the city alone and immobile. Maybe I could just see my local general practitioner first.

I have never felt this helpless before. I know there are people who live like this everyday. I don't know how they deal with it. What is next for me? I'm kinda concerned.

Thanks for your ears,

#2 Sheryl

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Posted 15 January 2010 - 02:27 PM

Sorry to hear that you are having to deal with so many issues of late Barefut. I hope something can be done to help you with your pain. It sure hurts us when we know others are also hurting. I hope your sister is still able to help you out at times. Maybe she can go with you to some of your appointments if you aren't up to driving because of all the joint pain. It sure would be nice if our general practitioners could take care of the majority of our problems. Sure would save time and money on the long trips to specialist. Let us know what you find out.
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#3 enjoytheride

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Posted 15 January 2010 - 03:37 PM

Have you had your vitamin D levels checked recently? I found that boosting my supplementation of that helped with the profound weakness and pain I was having.
Just an "it helped me" sort of thing- have no idea if it would you but it's easy to check.
Whatever the problem is, I hope you find something to help soon.

#4 ladyhawke

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Posted 15 January 2010 - 04:16 PM

Hi Barefut
Man, that don't sound so good. What if you were to email your rheumatologist and ask if it would be ok to see your general practitioner or would they rather see you.....I found once I went on the prednisone and imuran that I got stronger and the weakness went away. Keep us posted....hugs & all good wishes - Lisa
Life is NOT meant to be a struggle. Life is meant to be joyously abundant.

#5 Joelf

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Posted 16 January 2010 - 06:20 AM

So sorry to read about your awful joint pains, Barefut. :(

My joints were very painful, particularly my knees, if I sat for any length of time; however I found that once I started taking Prednisolone it certainly improved them no end. Maybe your rheumatologist or local general practitioner could prescribe some anti-inflammatory medicine for you which might make the pains a little more bearable.

Hoping you soon feel more comfortable. :emoticon-hug:

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#6 barefut

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Posted 16 January 2010 - 06:53 PM

Thanks Guys,

I talked to a friend tonight who told me that lower back pain due to a bulging/herniated/ruptured disc can cause the kind of pain and weakness I am feeling in my hips, knees and ankles.

I have had recurring pain from a bulging disc for 12+ years and I do have the lower back pain with it all right now so I am now wondering if she might be right. I am going to try to get into my general practitioner on Tuesday, if I make it that long - I may be going to ER with it.

I just self-medicateed with a boost of my prednisone which my rheumatologist said I could do when my back pain flared up. Waiting for some relief so I can sleep because now my lower back is hurting constantly - but my hips and knees only hurt when I try ot get up or walk.

Sheesh - I was into the ER with my oldest son for his migraine early this week and was back there today for my youngest so who had a lot of blood in his urine this afternoon (doctors said most likely a burst blood vessel from his fall on the basketball court this morning - no more blood now - Thankfully!!) I am starting to feel quite at home in our Emergency Room. It's embararssing when the doctors and nurses say, "Back again?" and they all recognize us. I just shake my head and roll my eyes. What's a mother with 2 crazy, active boys and scleroderma, among other things, to do?

#7 debonair susie

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Posted 17 January 2010 - 04:47 PM

Oh barefut...I'm so sorry to read of the troubles that have been going on in your household.
I'm just grateful that your sons are (hopefully) doing better since their visits to the ER.
As to their mom...well, Mom...

I'm glad you were given the go ahead to give Prednisolone a try. As for seeing your general practitioner...they usually refer if it's beyond their grasp. Is there anyone who could go with you on your trek to see your rheumatologist, by chance?

Please keep us in the loop?
In the meantime, I hope the Pred helps.
Special Hugs,

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#8 miocean

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Posted 18 January 2010 - 04:49 AM

Barefut,
Are you doing any better now? Were you able to get in and see your doctor? I know how difficult it is to have scleroderma and I don't have two kids to run around after. And fortunately, I haven't really had any pain.

Keep us posted as to what is going on and I hope you you are feeling better.

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#9 barefut

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Posted 18 January 2010 - 03:26 PM

Thanks Susie and Miocean,

Ahhh prednisone the wonder drug. I can move! My local doctor's office was closed today but will call them tomorrow for an appt. I do think this stems from my back. I am guessing 2 weeks on increased prednsisone and rest rest rest!

Thank you for your concern,
Love you guys,

#10 Margaret

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Posted 20 January 2010 - 02:47 AM

Hi Barefut ,

How are you doing today?

Take care, Everyone.
Margaret