Posted 17 January 2010 - 02:28 PM
I know we've had lots of conversations about Raynauds but I am just throwing this out there because I am wondering how long it took everybody before they actually needed to take any type of medication for it? I realize of course that it affects everybody differently, especially in severity, so I'm curious to see if our answers will be all over the place or not? Curious to know if it took weeks, months or years? My feet have been misbehaving longer than my hands...my hands dove in last fall...so far, I am not taking anything for it yet....anyone else willing to share their experiences? Thanks.
Posted 17 January 2010 - 02:33 PM
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Posted 17 January 2010 - 02:59 PM
Posted 17 January 2010 - 04:26 PM
I started on BP medication immediately. The idea was to protect my kidneys. However, my BP was quite high, so it also helped, not only that, but also my raynauds.
I would advise anyone who is found to have circulation problems in their fingers...to ask for medication to help with that.
Posted 17 January 2010 - 05:31 PM
Raynauds is a minor problem and I just try to do the things I see that helps. Gloves do little to help I think because there is not enough warmth to hold in.
I have not been diagnosed with Sclero but get a positive on almost all labs except, thankfully, RA. The rheumatologist. has verified the Raynauds and has given additional diagnosis.
Does anyone have any comments on why the oxygen clip will not work on me?
THANKFULLY I live in Florida.
Posted 17 January 2010 - 10:54 PM
The first symptom I had was Raynauds. In 1966 we had gone from New Zealand to England and in our first few months there I developed Migraine and Raynauds. I put up with it all the time we were away from hone - nearly 3 years - and didn't actually ask anybody about it until about 1971 when I happened to mention to my general practitioner about the Telangectasia and Raynauds. He told me what Raynauds is and said there was nothing to be done. So I just put up with it and all the other Sclero things which developed over the years until I went to my general practitioner(a very different person this time) with another problem and all she could fix on was my blue fingers. This was about 2002. I told her nothing could be done it was just Raynauds!!
In very short time I had been tried on Nifedipine, something else, then Amlodipine. The first two made my headaches worse, the Amlodipine banished the Migraines forever - I have never had another one and over the years the Raynauds has lessened from severe to almost non-existent. I have been challenging myself this summer and I cannot bring on an attack. I still take the Amlodipine 10mg once a day at night because I am terrified of the Migraines coming back.
Over the years I did have digital ulcers but I didn't know what they were! Our climate is somewhat like yours - we are temperate - no days below +7C and none over +26C or so in the summer. I think the climate has made a huge difference to me.
I think that drug regulations are different here from the US but I would say that the Amlodipine has saved me much misery. There is a little problem with fatigue but lately I have solved that by taking my dose at night when I am going to go to bed anyway.
Good luck to you finding something that helps.
Only warm hugs from us today - the temperature has dropped a little and we have had rain today.
Posted 18 January 2010 - 02:53 AM
Posted 18 January 2010 - 07:57 AM
Posted 18 January 2010 - 11:55 AM
In reality I plan on doing nothing about it unless I get ulcers having said that you do wonder if the prevention is better than cure approach is the way to go.
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Posted 18 January 2010 - 01:46 PM
Posted 18 January 2010 - 08:03 PM
Posted 18 January 2010 - 09:27 PM
However, I wanted to share with you my experience in helping myself regarding blood circulation issues. My hands and feet were always cold and they became extreme heavy, tired and sensitive to cold last year. I went to hyperbaric therapy 10 times and for the next 12 months I had my circulation tremendously improved. Not very fancy but effective.This was not the hyperbaric chamber but hyperbaric treatment in a sac under the pressure. I was told the chamber has some bad effects due to oxigenation and it is not advisable (don't ask me why). If I were not too lazy I would have done it this year again, but for certain I will have to go before the end of the winter.