Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.



  • Please log in to reply
8 replies to this topic

#1 KayTee


    Senior Bronze Member

  • Members
  • PipPipPip
  • 84 posts
  • Location:Northern California

Posted 20 January 2010 - 11:30 AM

Thanks to all who recommended I journey further to see a scleroderma expert.
I got an appointment the very next day and spent over an hour with rheumatologists at a university hospital scleroderma center.
They were thorough, informative, kind and professional.
They talked to me about what they were seeing? And had lots of questions for me!
Tests have been ordered, I'm already on new meds, and most importantly I feel much more hopeful.
The difference between the visit to my local rheumatologist and the scleroderma center is like night and day.
Kay Tee

#2 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,113 posts
  • Location:New Mexico

Posted 21 January 2010 - 04:14 AM

I'm so glad your appointment was productive and encouraging. It's alway nice to know that you are in good hands. Thanks for letting us know how things went.
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#3 Vanessa


    Senior Bronze Member

  • Members
  • PipPipPip
  • 94 posts
  • Location:Teddington Middx UK

Posted 21 January 2010 - 06:32 AM

I am so pleased for you that you got seen so quickly and all went so well.
I will have my 1st appointment next Thursday and can't wait.
Who would have thought that the prospect of a hospital appointment could be so exciting!
Hey ho.

#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 21 January 2010 - 09:19 AM

Way to go Kaytee! When you have confidence in your medical team it's easier to have hope in your prognosis.

Vanessa I'm looking forward to hearing how you get on...it's so exciting!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#5 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 21 January 2010 - 10:16 AM

Kaytee that is wonderful!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#6 warmheart


    Silver Member

  • Members
  • PipPipPipPip
  • 109 posts

Posted 21 January 2010 - 02:05 PM

That's great, Kay Tee; glad everything's working out so smoothly for you!



#7 Snowbird


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,007 posts
  • Location:Canada

Posted 21 January 2010 - 02:59 PM

I'm glad for you KayTee....be sure to keep us updated on what they say and how you are doing!
Sending good wishes your way!

#8 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 21 January 2010 - 03:29 PM

That's great, KayTee!
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#9 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 23 January 2010 - 10:47 AM

I am so happy that you had the experience you did at the scleroderma center. To get in so quickly was definitely an added "perk" to the equation :happy-day:

Thank you so much for sharing your wonderful information, Kay Tee... We SO love hearing great news!!!!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)