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5 replies to this topic

#1 tom6



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Posted 24 January 2010 - 05:42 AM

Hi Everyone,

I'm new here and to make it short, I have all skin and joints symptoms known for this disease. I hope to find some answers and support here. Cheers!


#2 Sheryl


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Posted 24 January 2010 - 05:53 AM

Tom6, welcome to Sclero Forums.
I hope you are reading everything you can find on Scleroderma and its symptoms. Knowledge is the key for us, to give our doctors better methods of helping us deal with our many issues.
Strength and Warmth,

Sheryl Doom
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#3 Jeannie McClelland

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Posted 24 January 2010 - 07:53 AM

Hi Tom,

Welcome to the Forums! I'm sorry you've been diagnosed with scleroderma and have what sounds like fairly extensive involvement. You're fortunate to be in the UK, where there is a good support group already established and quite a number of knowledgeable doctors. Are you seeing a specialist? And have you made contact with the UK Scleroderma Society?

Best of luck with your treatment and warm wishes,
Jeannie McClelland
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International Scleroderma Network

#4 Sweet


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Posted 26 January 2010 - 10:35 AM

Hi Tom!

Welcome! Sure glad you joined us. We have several other male members as well so you are in luck! Post more when you can, and I'll look forward to knowing you better.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#5 Amanda Thorpe

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Posted 03 February 2010 - 01:24 PM

Hello Tom

Welcome to the forum!

Are there any particular questions or concerns you have, we're here to help.

Take care.
Amanda Thorpe
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#6 Lynnie


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Posted 28 February 2010 - 02:19 PM

Hi Tom,

I'm new here to!! I've posted in order to get in touch with fellow sufferers. Like you the disease affects my skin and mainly my joints too. It's awful frustrating and I can sympathise with you wholeheartedly, I know how you feel.