Advice please on treatment
Posted 25 January 2010 - 04:08 PM
that have it with Scleroderma, what is the usual treatment.?
I have already seen a Dermatologist for a different problem.
I asked him what the netlike spreading was on my legs, and
he did confirm that I had Livedo Reticularis. He didn't seem
very concerned about it and sent me on my way. It is only now,
that I have researched it further, that I am a little concerned.
I am at a high risk of blood clots, this worries me, as I have a
sister that had a stroke at 40 years old. And, an Aunty that
died in her sleep at 39, from an anyurism (sorry about the spelling).
I'm hoping that someone can offer some advice.
Posted 26 January 2010 - 03:17 PM
I also have livedo reticularis with scleroderma. My rheumatologist tells me it is worsened by cold and has not offered any treatment for the livedo itself. It's my understanding that if it is secondary to another disease (like scleroderma or lupus), treating the underlying cause is usual. I try not to let my legs get cold (hey, with Raynaud's I try not to let anything get too cold!) and I also try to make sure to get up and walk around frequently. If I'm going to be sitting for a long time (car or plane trip), then I wear compression stockings.
I think with your family history, it might be a good idea to discuss this with your family doctor. He can check your clotting time with a simple blood test, monitor your blood pressure, discuss other risk factors, etc.
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Posted 27 January 2010 - 05:25 PM
Posted 28 January 2010 - 04:07 AM
I have livedo reticularis, too, from time to time. It is noted several times in my medical records but at the visits the rheumatologists didn't even make a verbal comment about it. I think it is considered to be more of a clue or a symptom but not, in itself, anything that requires treatment. The focus would be on treating any underlying conditions (scleroderma, lupus, antiphospholipid syndrome [APS]) and on whether or not you currently have a clotting condition that requires treatment.
And actually, I hardly ever notice it myself. It centers around my knees/legs, which I usually have covered with slacks. The livedo can blossom in very chilly exam rooms when I don't have enough blankets. I know now to always try to remember to ask for extra blankets for exams, if the room feels chilly to me (which means the room might be perfect temp for anyone else.) So, staying warm is key for me and is all the treatment I need for that particular item.
Ask your doctor about it, particularly about whether it might be good to run any additional tests, such as the clotting stuff or even APS antibody tests.
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Posted 03 February 2010 - 08:39 AM