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Dried out throat


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#1 Vanessa

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Posted 30 January 2010 - 11:06 PM

A couple of nights this week I have woken with a completely dry throat.

I am not sure what the name is but the bit that dangles between the tonsils completely dried out and even after drinking lots of water still feels uncomfortable.

The first time it happened I had eaten a very strongly flavoured curry and the next time it was after going for a meal where I had more than 1 or 2 glasses of wine!

Other than the obvious of cutting out alcohol and sticking to more bland food has anyone else experienced this and have a solution?

#2 Sharonvandee

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Posted 31 January 2010 - 12:41 AM

Hi Vanessa

I too suffer from this part of the condition. I have been told by specialist that it is because of Sjogren's. I will often wake up dry coughing, almost feeling like gagging because it is so dry.

I use a spray which make like synthetic saliva, this is far more beneficial than drinking heaps and still feeling dry.

Might be worth a try.


Shaz
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#3 ladyhawke

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Posted 31 January 2010 - 03:56 AM

I wonder if it "is" something eaten that causes this. I'm not so sure. I have it from time to time now, but about 2 months ago, I had it every single night. I kept a water bottle beside the bed and would wake up a few times through the night with that total dryness, I thought a couple of times that I would choke, it felt so dry. I've no idea what it is all about or what causes it. It's very uncomfortable though and a couple times actually a little scary. Will be very interested to hear what anyone else has to say about it. Thanks for posting this. - Lisa
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#4 Piper

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Posted 31 January 2010 - 08:30 AM

Hi Vanessa, I also have a very dry mouth from time to time and must drink everytime I wake up as my tongue is stuck to the roof of my mouth. What is worse for me is when my eyeball is stuck to the eyelid and it won't open. :blink: Thankfully this only happens intermittantly. Try taking some water to bed with you.

Hugs, Piper

#5 Amanda Thorpe

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Posted 31 January 2010 - 11:53 AM

Hello Vanessa

Scleroderma can cause the mouth to become dry, I have this only when I sleep, which I find bizarre bu they're you go. Have a read of our page about dry mouth.

As you can see by the replies this is a common complaint in scleroderma and it's a case of finding what works for you relieving the dryness. Once upon a time I used a artificial saliva that you sprayed into the mouth, it was vile to say the least!

How did you get on at your recent visit to the rheumatologist?

Take care.
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#6 judyt

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Posted 31 January 2010 - 02:20 PM

Hi,
I suffer quite a lot from dry mouth and throat and for years thought it was probably to do with my blood pressure meds, but a couple of years ago my Rheumatologist did a re-test of my diagnosis and came up with Sjogrens as well as Sclero. Sjogrens is quite commonly associated with Sclero I believe, as Lupus can be too.

Anyway Sjogrens is a disorder which affects the mucuos membranes so can cause excessive dryness in lots of places such as mouth and throat, eyes, lungs and genitals. I never go anywhere without my water, I chew medicated chewing gum (from the chemist or dentist) to help with mouth hygiene because the lack of saliva means you are short on cleansing bacteria for your teeth and gums, I use eye drops from the Optometrist.

I have a friend who has Sjogrens off the scale and she gets lots of lung infections because of the absence of properly moistened tissues in her lungs.

Talk to your dentist and optometrist for help, you will find they have lots of tips.

Judy T

#7 Vanessa

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Posted 01 February 2010 - 12:10 AM

Thanks for all the feedback folks.

The trip to Royal Free went really well. Prof. Denton wasn't in that day which I was really dissapointed about at first but soon completely reassured when I met Doctor Fonseca and Dr Ong.

I do have Diffuse Scleroderma and I am to go in for 5 days Iloprost and assessment. They said it should be in about 6 weeks.

I am feeling relieved to know that things are really getting sorted now.

I had a wonderful weekend as both my girls came home from university to visit and made a real fuss of me and we all went out for a very long lunch with some lovely friends on Sat (hence the alcohol naughtiness)

Also they put me on Fluoxetone for the nerve pains and it already seems to be working and I guess I shall have a permanent smile on my face from now on.

Tra la la

Vanessa

#8 Amanda Thorpe

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Posted 01 February 2010 - 06:23 AM

Hello Vanessa

I've seen Dr Fonseca and Dr Ong and am glad you feel you're in good hands now, you are. As suspcted you have diffuse scleroderma like myself, it can move fast but now you'll get the right treatment and medical supervision.

Let us know uou get on with the Iloprost infusion.

Take care.
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#9 mando621

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Posted 01 February 2010 - 01:54 PM

Hi all,

I have the Sjogren's dry mouth and eyes, and lately have exactly the same problem with my throat at night. It seems to come and go. It is scary sometimes when it feels like you are choking and can't really breathe. I find that my upper lip doesn't seem to be able to close completely when I'm asleep. I know I used to be a mouth breather at times, and I think that is part of what is happening. It is especially bad if I fall asleep in my easy chair. When I'm sitting up and sleeping my mouth doesn't close completely and I constantly wake with the desert dry throat.

My eyes are showing problems with the dryness now too. I have a band of calcium deposit on my right eye, which at times makes it feel like my eye is sticking to my eyelid.

I have esophageal involvement and combined with the dry throat, I've woken in a total panic that I can't breathe since my throat is dry, and I have trouble swallowing even my own saliva at times.

I can't say I've found anything helpful other than getting up for water. Trying to keep a clear head during that time and calming myself helps a little.

Mando.

#10 JustME

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Posted 01 February 2010 - 07:28 PM

Hi,
I too have Sjogren's. I take Pilocarpine (Salagen) for it. The 7.5 mg works for about 4 hours (the 5mg didn't work that well) so if its bad I have to get up in the middle of the night and take more. My tongue gets stuck to the roof of my mouth and my tongue gets so sore and my throat so dry it makes me gag. It helps sometimes to put a humidifier in your room at night but sometimes that can cause other breathing problems, don't put it too close I think 10-15 feet away from you is what is recommended. There is a newer drug called Evoxac that lasts for 8 hours but I can't take that as I am allergic but maybe it will work for you.

#11 perfect

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Posted 02 February 2010 - 05:18 PM

Hello everybody, another issue that I feel passion for. I too have the severe dry throat and mouth dryness, in fact it was so bad a few months ago at work while taking care of a customer I thought I was going to pass out, I could not swallow and I could not get any spit to make myself swallow ( this was before I was diagnosis with sclero, they thought I had lupus) ended up in the emergency room. I have had this for a while waking up in the middle of the night panic thinking I could not breath because I could not swallow. It is amazing to me all these symptoms that you all have is what I have been living with for a few years, just thinking it was me or the extreme stress I was living with, thank you to all of you for being here and sharing your stories for all of us. It really does help.
Sincerely,
Susie

#12 CraigR

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Posted 03 February 2010 - 12:09 PM

Vanessa,

There is an auto-antibody (blood) test for Sjogrens, as well as the Schimmer (sp?) test that measures the moisture in the eyes, and also a test that uses a biopsy of the lips.

I have seen Flouxetone on lists of drugs that can cause dry-mouth. Alcohol can have a drying effect, especially when it substitutes for water.

When I have awoken with a painfully dry mouth, gargling and swishing mouthwash for dry-mouth has been helpful (much better than water alone). However, be sure to rinse with some water, since residual mouthwash can cause a cough if you fall back to sleep and it flows deeper in the throat.

Good Luck,

Craig

#13 mando621

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Posted 04 February 2010 - 02:29 AM

Hi Craig,

Yesterday I was poking around the internet and found a site about chronic health issues. There was an article about Sjogren's and the antibody tests. It was interesting that the anti-bodies are most often found when the person has primary Sjogren's rather than secondary Sjogren's. When I first noticed problems I thought I had Sjogren's and all the blood tests came out negative. I have all the classic symptoms. The doctors wanted me to get a lip biopsy done, and another article on the same site discussed the reliability of the lip biopsy to determine Sjogren's.

So far, I have asked that my symptoms be treated as if I had Sjogren's even though the rheumatologist didn't think I had a clear diagnosis. Well, continuing on... I was at the surgeon for another issue and they had me review my records. The records are now electronic, so I saw a summary page of everything. On it was a diagnosis of Sjogren's. I'm not sure which doctor in the system put that on my records. Very interesting...

There is a lot more to Sjogren's than just dryness. It is confusing to read all of what can be involved in Sjogren's and not confuse it with what can be involved with scleroderma. No wonder a clear diagnosis is difficult to make.

Mando.

#14 summer

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Posted 04 February 2010 - 11:18 AM

I also complained to my Rheumtologist last week that I have
a very dry mouth/throat. She said there was nothing she could
do for me, and to chew gum.

If only that was true!

Thanks
Summer

#15 CraigR

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Posted 05 February 2010 - 08:50 AM

Mando,

I have secondary Sjogrens, and sometimes the antibody tesy comes up negative, but usually positive. The Schimmer test was most revealing for me. The little piece of paper came out almost completely dry, well into the area indicative of Sjogrens.

Summer,

When your rheumatologist said there was nothing she could do, that should be translated as "I am too poorly informed or lazy a doctor to know how to treat this condition".

There are many treatments avaliable. Drugs such as Salagen and Evoxac as well as helpful mouthwashes and saliva substitutes, and special toothpastes. The doctor should also do more work to draw a definite diagnosis.

Time to shop for a better doctor. Would you accept such lousy service from your mechanic?

Craig

#16 summer

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Posted 06 February 2010 - 12:54 PM

Craig, I agree with your remark, it is time to shop around for a different doctor.

I have been thinking about doing this for some time, but keep on putting
it off, due to digestive problems. Once things are a little better for me,
i will look into this further.

Kind regards
Summer

#17 bookworm

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Posted 06 February 2010 - 10:11 PM

Summer, I agree with Craig: Get a new doctor! I have not been diagnosed with Sjogrens, but I think I probably have it. My mouth is often dry, but I just chalked that up to the fact that I never seem to drink enough water.

What I began to notice was dry eyes and a painful stabbing in the left one. The stabbing scared me and I called my opthalmologist. He checked it out and said both eyes were very dry but the left one was VERY, VERY dry! I asked him if it had damaged my eyes. He said that it could and told me to get a certain over-the-counter eye drops and use them four times a day PLUS a heavier (than the drops)eye ointment to put in each night, and he told me to come back in a month so he could check on it. He seemed to take it quite seriously. I did ask if it could be Sjogrens and he said that it might be but that, his treatment would be the same for the eyes in any case.

I did return in a month and he said the eyes looked much better and I already knew they felt much better.

Only recently have I started waking up with a mouth so dry my tongue is stuck to the roof of my mouth. I figured it could be Sjogrens or the fact that my nose was a little bit stuffy and I thought I had probably been breathing through my mouth.

What symptoms would someone notice if his lungs were being affected? I have been very short of breath lately. I also am anemic, though, and I realize that, too, could cause shortness of breath.

Thanks everyone,

Mary in Texas

#18 erika

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Posted 08 February 2010 - 12:18 AM

I have always had dry throat because of my nose bone deviation and allergies and had always to breathe with mouth open. The dryness has increased with this illness and I find nose patches, which open the nose congestion and that you stick on your nose before sleep, very helpful.

#19 Amanda Thorpe

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Posted 08 February 2010 - 09:12 AM

Summer get a new doctor please! A rheumatologist who knows what they're doing will be a great help to you and maybe they'll have some ideas about your stomach issues.

Take care.
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#20 miocean

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Posted 10 February 2010 - 07:36 AM

My mouth is always dry. Thought it was because I am on fluid restriction due to dialysis. Last winter I developed a dry cough which was diagnosed as pertusis or whooping cough. I took some meds and it got a little better but now that the cold weather is here again I am very dry and coughing. It's like there's a part of my throat that is dry and I just can't get to it, hence the cough. I put a humidifier in the bedroom thinking it might help but my cough has become so bad at night that my husband moves to the couch. I feel badly but can't stop the coughing. Another new development is that I am constantly clearing my throat. That is annoying too, for both my husband and me. Does anyone else do that?

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