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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 moe

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Posted 02 February 2010 - 01:43 AM

hi newly diagnosed early december with diffused sclero after only three months itching driving me mad can anyone help

#2 miocean

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Posted 02 February 2010 - 04:47 AM

Moe,
I am sorry to hear you have diffuse scleroderma. I have had it for over 5 years now and one of the things that drove me crazy was the itching. It seems to be a major problem to those with the disease. I tried all kinds of oils, lotions. and medications to make it go away. I was taking a very hot bath every day so now I stay away from them and I got a vaporizer for my bedroom to moisten the air in winter. Those things seem to help. I am not itchy now, maybe it just goes away on it's own.

miocean
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#3 moe

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Posted 02 February 2010 - 07:16 AM

miocean,

Thanks. I've tried lotions and medication, will try a vapourizer and will let you know.

moe

#4 Sweet

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Posted 02 February 2010 - 11:19 AM

Hi Moe,

Welcome to the group. Arrrgghhh itching can be the worst! Mine comes in spurts, and when it's here I about go out of my mind. There are times when all I can do is wear thin cotton jammies inside out so the seams to touch my skin. When I'm in a flare like that, I use a heavy thick lotion, abstain from bathing as long as I can, and at times take an antihistamine. I do hope you can get it under control.
Warm and gentle hugs,

Pamela
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#5 perfect

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Posted 02 February 2010 - 03:52 PM

Hi, I also was just diagnosed in January 2010, but have suffered with the severe itching for the past few years, sometimes so bad I would be up all night itching. There was a time that they gave me a steroid for a short amount of time that did help but then when the steroid was gone, it came back. I found that when I shower in the morning, I put on a after shower oil. I am not sure that I am allowed to tell you brand or anything, but it is a oil made from sesame seed, which it does help me. You do not rinse it off you just pat dry. Plus the dermatolgist gave me a pill called cyproheptadine that I take twice a day.I am not sure that this is helping or not, it is so hard to tell with all this. I also am so bad at night I can not stand anything touching my skin, just cotton with no seams, or tags. My eyelids itch awful too. I feel for you, I wish I could offer more suggestions, I do have cortisone cream but when the itching is so wide spread I feel like I can not put on enough of it, or spread it far enough around all the parts of my body. I wish you good luck Susie

#6 miocean

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Posted 03 February 2010 - 04:42 AM

Moe,
I made a mistake on my post. I got a humidifier, not a vaporizer. I started using it again this year because I was coughing in my sleep and it has really helped. It is a good investment.

miocean
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