Posted 11 February 2010 - 05:07 AM
Many thanks for your insight.
Posted 11 February 2010 - 03:13 PM
I'm sorry you have esophageal dysmotility, but I'm glad in that it should help them narrow down your diagnosis a bit.
I get mouth and head sores, but I don't have "just" scleroderma, I have many other related autoimmune diseases, as well. So I can't say that it is, or isn't, related, from my personal experience.
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Posted 11 February 2010 - 05:07 PM
I asked my Gastroenterologist, about whether he could see whether there was any sign of slow motility. And, he said that an Endoscopy wouldn't be able to tell me that.
So, now I'm wondering, which doctor is right yours or mine .
By the way, I have Limited/Crest scleroderma, I have the RE of crest and also chronic bowel/stomach problems.
Posted 12 February 2010 - 04:05 AM
you know when I saw him before the procedure he said we would do the swallow test later and it sounded like that is when he could tell if it were a motility issue, so I was surprised too. Like I said I was groggy, so maybe I am mistaken. He said that he could tell that my swollowing problems are caused by my autoimune disease so maybe he is judging it based on what the esphogeal muscles looked like. I will post more when I get his written report.
Posted 23 February 2010 - 03:53 AM
I really don't know where I stand with all of this to be honest but he doubled up my dose of proton pump inhibitor and I feel okay, I can eat, swallow, all no problem for now.
Posted 23 February 2010 - 12:53 PM
The last time my son had an endoscopy the Gastro doctor said he could tell there was "still esophageal dysmotility present." Perhaps, it has to do with the pressure they feel when scoping the esophagus/stomach or whether they notice any esophageal movement. I am not too sure myself but I do remember him saying it was still present. It is the only symptom he currently has concerning his diagnosis.
Take care, Everyone.
Posted 24 February 2010 - 10:26 PM
Posted 25 February 2010 - 11:03 AM
When Gareth was first diagnosed, he constantly complained about his food getting stuck. His swallowing test showed dismotility in 2/3's of his esophagus. After being on Plaquenil for 2 months, he told me "it's working" and his food wasn't getting stuck. But, at his last endoscopy, the gastro doctor said he still had some dismotility in the lower portion. I would say, in his case, it did get better in that it doesn't bother him very much anymore.
Take care, Everyone.
Posted 25 February 2010 - 09:44 PM