Posted 14 February 2010 - 05:38 PM
Posted 15 February 2010 - 05:28 AM
I'm sorry your feet are being bothersome and hope they begin to feel a bit better soon.
If it is a new a different symptom, it would be a good idea for you to go to your primary care doctor now, rather than wait on it for two months for the rheumatologist. Then you will have the results and the records from your primary care doctor to take with you to your next rheumatology visit.
In fact, a good general rule of thumb is to get a board-certified internist as your primary care doctor, and then always go to them for every new or worsening symptom. They will be able to diagnose and treat 99% of things and, most importantly, document them for your rheumatologist. Otherwise, we end up over-burdening our rheumatologist with primary care symptoms that they may or may not have the time or inclination to handle (for example, if they think it is due to just a usual thing like a sprained ankle, and not directly to any rheumatological disease.)
Try that, let us know what you find out?
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099
The most important thing in the world to know about scleroderma is sclero.org.
Posted 15 February 2010 - 03:28 PM
My feet are like what you described. It was my feet that first alerted me to the possibility that there could be something happening to me other than just pain in the feet. The skin on the top of my feet is so thin and tight that I still have the scar from the skin biopsy that was done last summer. It took forever to heal.
It is very painful, especially at the ankles, with skin peeling and cracking, and HURTING all the time. There is a good possibility it is from the sclero, but mention it to your rheumatologist, and perhaps he will want to view your feet. I know when I was diagnosed, my rheumatologist told me it was scleroderma as soon as she saw the skin involvement of my feet (along with other symptoms).
I am sorry you are experiencing this. It is bothersome as well as painful.
Posted 15 February 2010 - 05:40 PM
Posted 15 February 2010 - 05:49 PM
Posted 15 February 2010 - 05:50 PM
hugs to you too,
Posted 17 February 2010 - 09:12 AM
I know for me it is good to massage and move the joints of my toes and ankles. Otherwise, they stiffen so with more pain involved. Yoga has been good for all of my joints, including the feet. Yoga and physical therapy was the first recommendation out of my rheumatologist's mouth, other than the necessary echo, blood, lung function, skin, and bone density tests.
The pain can be so unbearable that I take gabapentin (neurontin) just to be able to walk. Wearing shoes is almost out of the question, as well as socks.
I failed to mention that my feet started with swelling and pigmentation prior to the pain and skin tightening. That is why I hesitated to see the doctor at first. I thought it was from being too much on my feet. The skin was so tight at the biopsy that the doctor could not stitch the skin, and had to cauterize it. The skin tightening has progressed all the way up my legs, including the thighs. I have lost so much muscle and other connective tissue, I don't look or feel like the same person. But I manage to keep my spirit lifted, thanks to my family and friends.
This disease just sneaked up on me, and now I am learning to live with it.