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Biomarker for Diffuse Scleroderma skin has been discovered!


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it's been awhile


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#1 YFChoice

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Posted 20 February 2010 - 04:04 PM

It's been awhile since I've been on so I thought I'd pop in and see what's going on. Some interesting topics. I can personally say I have no bra problems but then I am a guy, so that's a huge relief.

Just a quick note....I've had systemic sd...is that what it's called now?...for 28 years and my wife has had it for about 16. We just celebrated 10 years of marriage. People think I'm strange when I say I'm glad I have scleroderma, but If it hadn't been for this roller coaster disease, I never would have met the love of my life. We're celebrating now by being grandpa and grandma to 3 and 5 year old grandsons. At age 54, that is a wonderful thing.

For all of the newbies. This disease does sometimes suck. I've done the heart attack, rounds of chemo and done enough ER visits and testing and been on enough meds to start a new wing of our hospital (or so it seems that way). But, I still have found joy in this life. I still smile and laugh. I am happy. A positive attitude sure helps to offset the negatives of having this illness. My wife and I not only stop and smell the roses....we grow them too. Just my dime's worth.

Glad to see this group is still active.
~ You have to think anyway.....you might as well think big

#2 Sweet

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Posted 21 February 2010 - 05:14 AM

Hi YF,

First thanks for the giggle about the bra :D and secondly, congrats on your romantic notions about marriage, and family, and good advice to all.

Nice to hear from you.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 pinnygig

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Posted 21 February 2010 - 05:36 AM

Hear hear!! :D

#4 Jeannie McClelland

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Posted 21 February 2010 - 06:05 AM

Posted Image
Just a little thank you for the positive words! All my best to you and your sweetheart,
Jeannie McClelland
(Retired) ISN Director of Support Services
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International Scleroderma Network

#5 KayTee

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Posted 21 February 2010 - 10:59 AM

Thanks. I need these reminders on certain days. :thank-you:
Kay Tee

#6 smac0719

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Posted 21 February 2010 - 02:44 PM

YF,

Hello to you and the Missus. Glad to hear from you and to know the both of you are well.

P.S. Be glad you don't have the bra issues :D
I may have Scleroderma, but Scleroderma doesn't have me!

#7 Amanda Thorpe

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Posted 22 February 2010 - 04:58 AM

Hello YFchoice

How lovely! You have a super attitude and I hope you and your wife have much to enjoy for years to come. :happy-day:

Take care.
Amanda Thorpe
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#8 Snowbird

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Posted 22 February 2010 - 11:26 AM

I'm just having such a chuckle over the 'bra issues' in this string....congratulations YFChoice on your anniversary and of course although a little belated on the wonderful grandsons! So nice of you to pop in and check on us...keep up the good work...we enjoy the chuckles!
Sending good wishes your way!