it's been awhile
Posted 20 February 2010 - 04:04 PM
Just a quick note....I've had systemic sd...is that what it's called now?...for 28 years and my wife has had it for about 16. We just celebrated 10 years of marriage. People think I'm strange when I say I'm glad I have scleroderma, but If it hadn't been for this roller coaster disease, I never would have met the love of my life. We're celebrating now by being grandpa and grandma to 3 and 5 year old grandsons. At age 54, that is a wonderful thing.
For all of the newbies. This disease does sometimes suck. I've done the heart attack, rounds of chemo and done enough ER visits and testing and been on enough meds to start a new wing of our hospital (or so it seems that way). But, I still have found joy in this life. I still smile and laugh. I am happy. A positive attitude sure helps to offset the negatives of having this illness. My wife and I not only stop and smell the roses....we grow them too. Just my dime's worth.
Glad to see this group is still active.
Posted 21 February 2010 - 05:14 AM
First thanks for the giggle about the bra and secondly, congrats on your romantic notions about marriage, and family, and good advice to all.
Nice to hear from you.
Posted 21 February 2010 - 06:05 AM
Just a little thank you for the positive words! All my best to you and your sweetheart,
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network
Posted 21 February 2010 - 10:59 AM
Posted 21 February 2010 - 02:44 PM
Hello to you and the Missus. Glad to hear from you and to know the both of you are well.
P.S. Be glad you don't have the bra issues
Posted 22 February 2010 - 04:58 AM
How lovely! You have a super attitude and I hope you and your wife have much to enjoy for years to come.
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)
Posted 22 February 2010 - 11:26 AM