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Biomarker for Diffuse Scleroderma skin has been discovered!


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Introducing myself (Pawndy)


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#1 pawndy

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Posted 23 February 2010 - 09:55 AM

I am 56 years old and I have been sick now for quite some time. I have Scleroderma in my lungs. I have several more problems but Scleroderma is the worst of my problems. I have been on oxygen since 02/07. I am pretty much home bound. I have a good husband, four grown children, and seven grandchildren.

I am joining because since I am pretty much homebound; the computer is where I have an outlet for outside friendships.
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Pawndy

#2 Shelley Ensz

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Posted 23 February 2010 - 10:12 AM

Hello Pawndy,

Welcome to Sclero Forums! You have certainly come to the right place for friendship and information for scleroderma.

Is it mostly oxygen that is keeping you at home, or just not feeling well? I ask because many here are on oxygen and can offer a lot of tips for increased mobility, if you need them.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Sweet

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Posted 23 February 2010 - 01:47 PM

Hi Pawndy!

Welcome to the forums. I'm really glad you joined us. You'll find a wealth of information, support, and good ole friendship here.

I look forward to knowing you better! :emoticon-hug:
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#4 Jeannie McClelland

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Posted 24 February 2010 - 07:12 AM

Hi Pawndy,

I'm going to be 63 soon, have a great husband, 4 grown children, and only 1 grandchild. What's your secret for getting more grandkids? I've been hinting like mad, but it doesn't seem to be working! Posted Image

I'm on oxygen too. It's taken some getting used to but so far so good. There are ways of getting around with O2 that won't wear you out, it's all in knowing the little tricks.

Have you had a chance to check out our Fun and Friendship Forum? It's what the name implies and then there are 'live' chats twice a week where you can also make new friends.

See you around the Forum!
Jeannie McClelland
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#5 Amanda Thorpe

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Posted 24 February 2010 - 08:08 AM

Hello Pawndy

Welcome to the forum, you're in the best place for all things scleroderma! I am sorry you're on oxygen and as already said many here are also and what they still get up to despite it is amazing.

I look forward to hearing more from you and take care.
Amanda Thorpe
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#6 Joelf

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Posted 24 February 2010 - 09:35 AM

Hello Pawndy

Welcome to this friendly and informative forum. :bye:

It sounds like you have a lovely and supportive family though I'm sorry to hear that you are housebound.

I'm 57 and married with no children and I also have Scleroderma in my lungs but thankfully am not on oxygen. :)

I'm sure you will make lots of new friends here and I look forward to reading your posts.

Jo Frowde
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#7 Snowbird

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Posted 24 February 2010 - 12:57 PM

Hello Pawndy

Just my 2 cents worth to welcome you too! I am also sorry to hear you are housebound...one never knows and we can always hope, perhaps you will learn a thing or two here that might help give you more freedom as Shelley mentioned? You've definitely come to the right place for both information and friends!
Sending good wishes your way!

#8 Shelley Ensz

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Posted 26 February 2010 - 07:25 AM

Hi Pawndy,

Congratulations on graduating from the Welcome Forum! I am moving this thread to our Main forum now.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#9 scampie5

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Posted 27 February 2010 - 08:52 AM

Hi Pawndy glad to see you have found this forum I have lung involvment but not on oxygen even thou if I am really bad I do need some you will find so many friends and help here and hope you join us in the chat room on Wednesday nights when we all get together for a chat so hope to see you there take care Lynn

#10 pawndy

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Posted 28 February 2010 - 05:17 PM

Thank you for your warm welcome. The oxygen is not the only thing that keeps me from going out. I do have an electric chair and liquid oxygen to make it easier to go out. My family encourages me to get out more.

I have severe pain in my legs, back and feet. I have had several embarassing things happen, while in public, just trying to get up from the table at restaurants. Going out is just not worth the effort or the pain.

I have enjoyed reading the other post here and I have already learned new things. Again, I want to think everyone for their warm welcome.

Pawndy
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Pawndy

#11 miocean

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Posted 01 March 2010 - 04:29 AM

Pawndy,
I am sorry you are experiencing pain. That is very difficult to deal with. I,too, am on oxygen at times when I exert myself. I don't like to use it because it makes it obvious that I am sick. Otherwise I look fine. So I avoid exerting myself which keeps me from doing things too.

Keep on posting, ask questions. This forum has been so helpful to me. Many others just don't understand.
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#12 epasen

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Posted 01 March 2010 - 09:50 AM

Hi there Pawndy,

Glad you made it here! I'm sure you'll find these wonderful ladies are great company.

I'm Emmi, 20-year-old girl from Finland with linearic scleroderma since -96. I got here in the fall 2007 or 8 I think and I can assure you I've found all the help and answers I've needed from here.

Take care,
Emmi