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Biomarker for Diffuse Scleroderma skin has been discovered!


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Report on imunologist visit


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#1 erika

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Posted 25 February 2010 - 11:08 PM

Dear all,

Finally I have been to immunologist! Long time waiting to get there (2 months since request). I have a new young doctor, he seems dedicated and knowledgeable about the issue. My working diagnosis is Sclerosis systemica in obs. (observation). He has ordered me to come to the hospital in 10 days for various examinations: routine immunological work, urine collected during previous day, RTG lungs, hands, feet, knees, spirometry, CO diffusion (?), skin biopsy (PHD&DIF?), heart ECHO, esophagus RTG...
Meanwhile I have started biological therapy but am not allowed to talk about it here. :yawn:
I feel now a little bit better because something has started to resolve. Waiting is killing me.
Regards,

Erika

#2 Shelley Ensz

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Posted 26 February 2010 - 08:10 AM

Hi Erika,

Oh my goodness, you are getting the royal treatment for taking a baseline, aren't you?

Well, it will be good to get it all over with at once, instead of dragging it out for weeks and months on end as has happened to many of us.

Are you used to medical tests by now, or are all these tests rather new to you?
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Amanda Thorpe

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Posted 26 February 2010 - 09:05 AM

Hello Erika

Most excellent news! The more tests the better so nothing gets missed and they have an excellent starting point, the next 10 days will pass in no time. Make sure you let us know how it goes.

Take care.
Amanda Thorpe
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#4 Snowbird

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Posted 26 February 2010 - 10:35 AM

Hi Erika

I agree with the others, the more tests and sooner the better to see where you're at for your baseline...good luck with them. I hope you let us know how they go too.
Sending good wishes your way!

#5 warmheart

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Posted 26 February 2010 - 10:57 AM

Hi Erika,

Wow. Well, it's good that you'll get to the bottom of things right now and get a final diagnosis of your symptoms. Here's hoping your mega-workup goes smoothly for you! Please keep us all posted.

Hugs,

warmheart

#6 erika

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Posted 27 February 2010 - 08:06 AM

Thanks girls,
I have had some of these tests last year when my previous doctor searched for rheumathoid arthritis - except echo, spirometry, CO, skin... I had also many other tests for various diseases (like Borelia, Parvo, Toxoplasma, hepatitis etc.). Since they can also mask into arthritis. It seems to me that now I am closer to the target and just wonder is my disease progressing slow or quickly, is it my esophagus or heart, or lungs which is affected, did I have this disease for a long time (was it interpreted as allergy or it existed with allergy along) or it just started two years ago when my joints started to hurt.... We will see, said the blind. Have a nice evening, or whatever time of the day you have there all over the world.

Erika