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Biomarker for Diffuse Scleroderma skin has been discovered!


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hello to all a few questions if you dont mind..


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#1 taytay

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Posted 28 February 2010 - 05:52 PM

Hello to all I have a few questions.. Is Progressive Systemic Sclerosis hereditary? Are there any early symptoms I should be aware of ? I've been diagnosed with Interstitial Cystitis and had a grandmother pass away with PSS. Could the IC be a pre symptom ? :(

#2 Sheryl

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Posted 01 March 2010 - 12:14 AM

Good morning taytay, and welcome to Sclero Forums. I sure hope that Interstitial Cystitis isn't a precursor to Systemic Sclerosis for you. Though not all of us with Scleroderma have Cystitis as a factor. There are many people here in our Forum that have family members with some form of Systemic disease process that they deal with. It may be just mixed connective tissue disease. What makes some people get the full blown case of Scleroderma even the doctors haven't figured that one out for sure. Search around the site and ask as many questions as you feel comfortable asking. Others will pipe in shortly and offer you additional support and courage. The road to finding out if you have this disease can take years. I would recommend learning but not worrying yourself for prolonged periods about this. If it happens in your future then you will be armed with great knowledge and coping skills.
Strength and Warmth,
Sheryl

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#3 Amanda Thorpe

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Posted 01 March 2010 - 04:25 AM

Hello Taytay

Welcome to the forum! I am sorry about your grandmother and can understand why this would be playing on your mind. Be encouraged by the fact that scleroderma is only hereditary in 2% of cases and what's more it's possible for some of the relatives of a person with scleroderma to have one of two scleroderma symptoms, like Raynaud's, but never develop the disease in full. So in other words there is a 98% chance that you will not develop scleroderma even if you develop a symptom or two!

We have information about interstitial cystitis that may be of interest to you particularly if you are recently diagnosed.

Take care and keep posting.
Amanda Thorpe
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#4 Jeannie McClelland

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Posted 01 March 2010 - 05:05 AM

Hi TayTay,

Welcome to the Forum!

You asked if Progressive Systemic Sclerosis was hereditary. As Amanda has already mentioned, it is rare for it to be passed on in families. We do have a page on Genetics and Scleroderma with a lot of information. There are certain factors that can increase the hereditary risk so you might want to look at the information and see if you fall into any of the increased risk groups.

I'm sorry you've been diagnosed with Interstitial Cystitis. That's no fun, for sure!

I hope you'll post often and let us get to know you better.

Best wishes,
Jeannie McClelland
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#5 Sweet

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Posted 02 March 2010 - 04:31 PM

Hi Taytay,

Welcome to the Sclero Forums. I see you already received a lot of good advice, and great links, so I will just add my welcome to you. :flowers:
Warm and gentle hugs,

Pamela
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#6 taytay

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Posted 03 March 2010 - 06:24 AM

:thank-you: for your wisdom and support. I seem to be taking after grandma in more ways than one. I'll relax for now and see what happens. I'll check back in here from time to time and keep you posted. Again thanks so much for just listening. This site is wonderful. Bless each of you. :thank-you: