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Mouth problems


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#1 erika

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Posted 02 March 2010 - 03:01 AM

Dear all,

My mouth was always very small and there was never enough space for all teeth. 3 1/2 years ago I have put the orthodontic braces to correct the teeth and have extracted 3 healthy teeth to fit the others in order. :barf:

A month ago a pimple occured in my upper mouth surrounded with redness. It reflects to the outside side of the mouth as a little bit of skin thickening (or something like that). A week ago my dentist has finally removed the braces and I have to wear silicon retainer at least 12 hours a day. The redness of the pimple area has spread to the part of the front gums. I put Propolis on the redness hoping it will heal.

Has anybody had redness in the mouth due to scleroderma or I just see an elephant instead of a fly? Your experience would be helpful!

Erika

#2 Shelley Ensz

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Posted 02 March 2010 - 03:56 AM

Hi Erika,

That is an excellent question!

Please keep in mind that I'm not a doctor, and I have no dental training at all, but the "pimple" does not sound like scleroderma and is not listed as a scleroderma symptom; rather to me, it sounds like it might be a gum infection.

Please get it checked right away, because odds are pretty good it isn't anything that is going to clear up by itself, unless it is just irritation from the braces or the retainer.

If not treated in time, gum infections can lead to destruction of the surrounding bone, systemic infection, and even death. So any abnormality like you are noticing should be very promptly looked at by a professional and treated, if necessary.

Here's hoping you can enjoy a full, happy smile with your braces off!
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 erika

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Posted 02 March 2010 - 04:23 AM

Thanks Shelley, I feel better immediatelly and I will check it ASAP. :happy1-by-lisa-volz:

#4 kaykay

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Posted 02 March 2010 - 07:15 AM

I get these. They are either white, puss filled like a blister or red, blood filled. sometime both combined or one of each right next to each other. It is part of my autoimmune (AI) condition, it often is attributed to Lupus, Sjogren's, MCTD - not sure which others if any. In my case, Plaquenil has had a positive affect on reducing the occurrence and their severity - before treatment they used to last anywhere from one hour to two or more months.

#5 Shelley Ensz

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Posted 02 March 2010 - 09:31 AM

Hi Kaykay,

I get mouth sores too, which they attribute to autoimmune disease, but they don't include the spreading redness that Erika was describing; it is the redness part that sounds to me like there could be an infection going on.

And when I get very painful mouth ulcers (like larger ones on my tongue), my dentist burns them off with an acid, which pretty much stops things cold. You can buy the stuff at the drugstore, however it is so painful that I cannot apply it myself, and I don't recommend trying it alone, either.

But Erika is not describing pain, so much as unusual appearance (pimple, spreading redness) and so deep that it is even affecting the outside of her mouth. That's why I think she might have something more than just the 'usual' (for us) sort of stuff going on.

So Erika, you simply must see the dentist and let us know what it turns out to be.

Folks, is it or isn't it a gum infection? Or a wayward mouth ulcer, gone bad? We're accepting wagers on the Sclero Hotline now! <Just kidding!!>
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 kaykay

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Posted 02 March 2010 - 10:05 AM

Oh, I'm not taking the bet - just mentioning possibilities, either way get it diagnosed is a solid idea. You're probably right about it -

Ouch - he burns them off of your tongue - oh ew.

#7 Shelley Ensz

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Posted 02 March 2010 - 10:22 AM

Hi Kaykay,

The Sclero Hotline is ringing off the hook -- we have 250 votes for mouth sore, 249 votes for infection. It's nearly a tie.

So now I'm wondering, would this be referred to as tongue tied? :barf:
Warm Hugs,

Shelley Ensz
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International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#8 Snowbird

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Posted 02 March 2010 - 10:32 AM

Shelley, you are so funny, you always make me laugh!
Sending good wishes your way!

#9 Shelley Ensz

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Posted 02 March 2010 - 10:45 AM

And Snowbird, you are so invariably kind, you always make me smile! :D
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#10 erika

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Posted 02 March 2010 - 10:11 PM

Folks,dont quarrel...
I have visited my neighbour dentist. She says there is a sore and irritation on the gums, she said nothing definite about the pimple on the upper lip. She shaped my retainer that it iritates less, she desinfected my mouth and prescribed desinfection liquid for mouth. She gave ma a cream with antybiotics and corticosteroid to put on the outside lip (where the pimple is inside)(she said it will penetrate into the mouth). Tomorrow I will go to the control.
Since I have no experience with sclero affecting the lips I was afraid that these changes were related to skin thickening on the lips which will spread around causing inflamation in the mouth(or better vice versa - inflamation will cause skin thickening). Well, I am totally confused by all this.
Thanks for sending me to the dentist, otherwise I would still hesitate: "Should I go or should I stay"...

Erika

#11 Sheryl

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Posted 04 March 2010 - 01:35 AM

Erika, I for one am glad you went and had your dentist check your mouth and give you proper treatment. I hope everything heals properly. For the price we pay for appointments and treatment medications, those things should work. Some times this trial and error stuff gets boring. But, what works for one person doesn't always work for another. Keep us informed on your progress.
Strength and Warmth,
Sheryl

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#12 debonair susie

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Posted 05 March 2010 - 10:08 AM

Thanks for letting us know that you went to the dentist and received good care, erika!

It is not pleasant when our mouths retaliate as yours did. It sounds as though your mouth did not care much for the objects sharing space!

At any rate, so glad you did what you did and are on the mend.

Have a good weekend!
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#13 erika

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Posted 11 March 2010 - 04:23 AM

Dear girls,

Thanks for your support. I just want to inform you about the new developments regarding this topic. I have both good and bad news. My inside mouth is okay, the inflammation has gone, but the "pimple" has stayed as a little swelling in the mouth (not painful any more). I can wear my retainer with no problems now. But the skin thickening on the upper lip has remained also, it will probably expand further...

Wait and see philosophy...

I love that most...

Hugs.

Erika

#14 Amanda Thorpe

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Posted 11 March 2010 - 04:41 AM

Hello Erika

Like I always say...*scleroderma is like a box of chocolates...you never know what you're gonna get!

Take care.


*F Gump
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#15 Weasel

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Posted 19 March 2010 - 06:18 AM

I am sorry you are having these problems and I can somewhat relate.
I've been having problems with tongue sores on and off for over a year now. They kind of look like cold sores and also the whole area around on my tongue looks very red and inflamed .

My regular doctor says that they can be caused by a illness, a lack of sleep and stress in general. She gave me a bunch of Prednisone( 3 one day, 2 the next etc) to take for a flare up but that didn't really seem to help all that much. It still took over a week for them to subside and they always come back soon after that.

The Rheumatologist said that patients with Lupus get them but since I didn't show positive tests for Lupus it can't be "that". And he didn't think they had anything to do with Scleroderma( I have a pos SCL-70 ).

I asked him what he recommends for pain relief to his Lupus patients because the sores really hurt when I try to eat or if they rub on my teeth and he had nothing to say except that maybe I should go see an Ear,Nose and Throat doctor.

I have considered changing doctors because he doesn't have much to say in general and I am not convinced he is all that informed about stuff. He doesn't think I have Scleroderma because I don't have thick skin on my hands and that-according to him- is something all people with Scleroderma should have first.

I've tried oral gels and sprays for the mouth sores and while these work short term, it doesn't last long so I usually used it a few minutes before I eat something. Does anyone have any suggestions on anything that provided longer pain relief?I can't take Anti Inflamatories because I have Kidney disease.

Thanks!

#16 Jeannie McClelland

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Posted 19 March 2010 - 06:51 AM

Hi Weasel,

I'm sorry about your mouth and tongue sores. That kind of thing can certainly interfere with your quality of life as well as nutritional status, since it makes it difficult to eat.

A visit to an ENT (ear, nose, and throat) specialist wouldn't hurt, would it? If you have a good dentist, he might also be able to help with advice, if not treatment. My dentist is a real honey about that sort of thing. There is also probably a list of foods and things to avoid lurking out there that would be handy to have. You know, no very hot/cold foods, nothing with sharp edges or very acidic (there go the salt-and-vinegar potato chips (crisps) foods, maybe changing toothpaste, mouthwash, and to a small soft toothbrush like the children's ones and being careful not to bump the areas of the mouth that are prone to sores.

Did you already have kidney disease when your doctor prescribed prednisone? The reason I ask is that steroids can precipitate a renal crisis, according to research. They're strong anti-inflammatories, but there are definite short and long-term risks to them.

I hope you get some relief soon and a good answer to the cause.
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#17 Weasel

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Posted 19 March 2010 - 07:23 AM

Thanks,

My doctors know about the kidney disease. My kidney doctor actually prescribed Prednisone for me before because I have problems with inflamed joints that she says are Gout which is something many kidney patients deal with. I have the Prednisone here for the mouth sores but I have only taken them one time and since they didn't do all that much, I haven't taken them again and just have them on standby for when it gets really bad. I already switched toothpastes and toothbrushes and between eating a renal and a gout diet there isn't a whole lot left you can eat ... :wacko:

I have tried some herbal tablets for cold sores before (you have to try to stick them on top of the sore and then they slowly melt there) and they did help. It's a bit of a challenge to get them to adhere depending on where the the sore is and I thought they are not cheap- it was something like 9 dollars for 8 of them. They are over the counter at the local drugstore.