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Biomarker for Diffuse Scleroderma skin has been discovered!


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Dry brittle hair


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#1 Vanessa

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Posted 05 March 2010 - 11:54 PM

Since developing Scleroderma my hair has become very dry and brittle and I have found that as I like to keep it long and I colour it I have to condition and use treatments on a regular basis.

I had heard that in Asia mustard oil is often used to soften hair and whilst in my local ethnic food store picked up a pretty big bottle for less than a pound.

I put a couple of teaspoons on dry hair and left for an hour before washing and have to say it has really left my hair feeling soft and silky. The one I got was even Jasmine scented.

#2 Jeannie McClelland

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Posted 06 March 2010 - 03:35 AM

My one grandmother swore by an 'egg wash' and the other one had my dad save a little beer for her. When my hair gets to more looking like the winter-dead grass in the garden, I rub in a fair amount of olive oil and let it sit for a little while. I usually do my dry skin at the same time. Shower and shampoo as usual afterwards. Now all I need are the spa attendants, a little fancy food and music, and some of those huge, ultra-soft bath towels.
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#3 Joelf

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Posted 07 March 2010 - 05:26 AM

I'm sure I've heard of people using vinegar before the final rinse to make hair shine; I've never tried myself as I don't really want to smell like a chip shop!! :mellow: ;)

I have a very good conditioner which my hairdresser recommended; it does seem to make my hair feel very soft but I don't use very much of it at a time because it 1) can make my hair a bit flat and 2) it is very expensive! B)

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#4 Amanda Thorpe

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Posted 07 March 2010 - 06:16 AM

Yeah I've heard of the vinegar thing as well! I've also heard of washing up liquid giving a good shine but it must strip all the oil out of the hair surely!

I buy all my hair products including shampoo and conditioner from the hair salon I have been going to for about 15 years now, I also have the same hairdresser because she's that good!

My hair is thinner but I thing that might be the methotrexate, apart from that I don't think sclero has done anything to it.

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#5 debonair susie

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Posted 07 March 2010 - 12:30 PM

Good thread, Vanessa!

The egg shampoos, beer shampoos and the vinegar rinses...bring back alot of memories for me!
I also used to use Olive Oil to condition my scalp, due to the Psoriasis I've had for many years.

The vinegar rinse also added a red tint to my hair, which I liked!lol

I've also heard that it's good for the scalp and hair...to alternate shampoos every couple, or so, washings.
One shampoo I use, every third washing, strips the build-up of shampoos and condtioners.

My hair has thinned substantially. Here are a couple of reasons I can think of: Scalp Psoriasis,as well as aging.

(Maybe instead of my throwing those hair away, I should be saving them for a wig for myself....YIKES)! :emoticon-bang-head:
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#6 Lynnie

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Posted 23 March 2010 - 02:17 PM

My tip was made from a total mistake but was brilliant all the same now guys don't laugh.....but I accidently put fabric conditioner on instead of my conditioner as I was washing my hair in the kitchen under my mixer tap (my shoulders and arms hurt that day!!)and what a surprise I had the softest hair ever and as it was for sensitive skin so didn't do any damage to my daft skin, so girls if ever you run out of conditioner its an option! haha :emoticon-hug:

#7 warmheart

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Posted 24 March 2010 - 07:05 AM

Brilliant, Lynnie! :girly1-by-lisa-volz:

Hugs,

warmheart

#8 warmheart

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Posted 24 March 2010 - 07:09 AM

My hair is long, thick, and very very dry. I use extra-strength smoothing serum and then a finishing creme, both from the drugstore. Wish I could find cheaper solutions! One of the hairdressers in the salon I go to has hair a lot like mine and hers looks gorgeous--she uses TONS of hair product and they tell me that's the secret.

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#9 Weasel

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Posted 25 March 2010 - 09:30 AM

Hi,

While I used to have super thick and curly hair, as of lately I seem to be losing quite a bit and it' s getting thinner , straighter and more brittle. I do color my hair .
I've had really good results with some natural products. I like henna shampoos and conditioners and I will be trying out a tea tree version.

#10 miocean

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Posted 26 March 2010 - 01:41 AM

When I first got scleroderma my hair started falling out ad became very thin. Over the years it has thickened again but I still have fine hair. I color it but it grows slowly so I don't have to do it that often. I just had a kidney transplant and am taking high doses of prednisone, I read that it can make your hair dry and brittle so you should tell your hairdresser if you are on it so she can really condition it. I can't go in a salon for five more weeks so I will definitely be ready for a full work up!

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#11 Sheryl

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Posted 26 March 2010 - 02:14 AM

Miocean, some of the things everyone has written about have worked for striping of hair products off your hair and scalp. Some help with making the hair shinny. You can use anything from Mayonnaise room temp and worked through the hair and scalp. You should be able to buy a cholesterol based thick cream conditioner at any beauty supply or possibly some stores that you can put on and leave on for a few hours if preferred. You can cover your head with a plastic bag and set under a hair dryer or use a blow dryer to heat head slightly with any good conditioner and it should soften the hair follicles and make your hair more pliable. Cleaning and stripping your hair of months of hair sprays and other goop is what is required first. You can do that simply with a rinse of baking soda and water. The soda really softens your hair. It cleans off all residues of products left on your hair and scalp. After cleaning your hair then if you desired you could still condition your hair with a conditioner. What ever you decide to try that has already been mentioned here, in this chat none of it could hurt your hair. Beer rinses work best to lighten hair when you are out in the sun for several hours. They help in lightening the hair and also help strip hairspray and dandruff off your scalp. I was taught in beauty school (Cosmetology school) years ago the simple baking soda and water rinse was the best stripper and softener for a persons hair. And you only have to do this a few times a year to prevent new built up, and it keeps dandruff at bay if you have a problem with that. A good hot oil treatment can also help with a persons scalp condition. Treating the head, not just the hair is the important factor. That is my two cents worth. Good luck my friend.
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#12 Lynnie

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Posted 26 March 2010 - 09:32 AM

Hi brill tips!! question, how much is the ratio of soda to water?? I dont want to bleach my scalp of hair hahahaha :thank-you: lynn x

#13 Sheryl

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Posted 28 March 2010 - 01:28 AM

Lynnie, you can use about 1/4 cup baking soda to a 2 cup container of water. If your hair is very short you can put a tablespoon of soda in a large tall glass of water. You can do this before shampooing your hair. Just pour on a little at a time and rub through the hair to the scalp. You will be amazed on how clean your hair will feel afterwards. Tell everyone your experience afterwards. It won't bleach out your hair.
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#14 Sandy B

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Posted 30 March 2010 - 01:18 AM

Hi Sheryl,

I'm sure you meant Lynnie to put a plastic bag over her hair and not over her head which would be dissastorous, lol. Love the tips.

Sandy B

#15 Sheryl

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Posted 30 March 2010 - 01:39 AM

O K Sandy B, over her head but not including her face. Even talking to adults the results could be horrifying. We sure don't wish to be misunderstood.
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#16 Patty Arche-Hueck

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Posted 04 December 2010 - 04:51 AM

another reason to love this group Posted Image ,now that my hair is acting up Posted Image ladies,
hugs Patty