Update on my Doctor's Appointment Yesterday
Posted 10 March 2010 - 06:05 AM
Posted 10 March 2010 - 06:56 AM
I'm sorry you had a disappointing doctor's appointment. I've had a few of those myself.
I hope a great big hug will make you feel a little bit better, so here goes:
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Posted 10 March 2010 - 10:06 AM
I told him I didn't want the prescription, and he looked right at me and said, "Then suffer." He wouldn't refer me to anyone.
Well, I did suffer for another month, ended up in emergency and thank goodness, there was a doctor there whose mother had polymyositis. He recognized the symptoms and did the bloodwork.
Needless to say, I never went back to the "jerk". I should have gone back and told him exactly what to do with his premarin!!! I was frustrated and terrified, 2 weeks after the polymyositis diagnosis, I was also diagnosed with scleroderma. I had to have water drained out from around my heart, etc. That was 3 years ago.
There's help out there, unfortunately it's up to us to find that help. I'm not a fighter and I don't like confrontations of any kind, but I found out that I had to learn to really take a stand to get someone to listen to me. Before that neurologist my husband phoned a clinic to try to get me in to a rheumatologist. I remember hearing him almost yelling at them and they stood their ground and said a 6 month wait my husband said, "She'll be gone by then," and it didn't make any difference to them. So I had my bloodwork from the hospital faxed to them and when they saw the numbers they had me in the next day. This was no thanks to any doctors or other professional, it was my husband arguing with the receptionist, and us getting the paperwork faxed through even though they said not to.
Don't be afraid to try another doctor, and above all don't give up. I had a neurologist who referred me to a rheumatologist. When you see the gastro doctor, take your questions to him and ask him for a referral. Don't give up.
Big hugs to you, let us know how things go,
Posted 10 March 2010 - 01:43 PM
When I checked my paper work at home, I figured out he read the wrong part of the test but when I called back, he had figured it out and told me to keep taking what I was taking. Okay.
Then I saw the rheumatologist and she did the same thing- read the wrong part of the test and said I shouldn't take so much and then, when I said something, she pointed at the screen and said "See?" Then, looking at my expression, said that I was anxious. I hauled out my records and showed her the actual lab printout and she said "Now why is that different?"
Well- yes- how can I believe a doctor who can't read the tests and then tells me I'm anxious? Yes it makes me anxious........
Where's that cat? Oh yes (bang, bang, bang........)
Part of the trouble with computer records- the lab results sent by the laboratory have an explanation of the results on the sheet. I used to think that was funny (as if the doctors wouldn't know I thought) but no longer. Now I'm grateful they did otherwise I wouldn't know myself.
This is so common- sort of doctor speed dating.
Posted 10 March 2010 - 02:11 PM
Awww I'm so sorry. I would like to say I've never experienced that, but frankly, I have many, many times. Twice now since I've been seeing my rheumatologist, I've had to start out by saying that I was really unhappy about my last appointment, that I felt rushed and didn't get my questions answered, and still had to pay the bill. Then said "Today will be different, so I hope you are ready for my list" and then whipped out the paper! Now he says, "Did we cover everything on your list?"
Posted 10 March 2010 - 07:49 PM
Hugs right back atcha!
Posted 11 March 2010 - 04:02 AM
Sorry that bites! We always have such high expectations, rightly so if you ask me, when we see our rheumatologists because they're the ones we rely on to know our disease and how to treat it.
Sweet's recommendation to take charge of the consultation from the very beginning is an excellent idea. You pay so you should get your say!
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Posted 11 March 2010 - 07:40 PM
Also, I was very relieved to read that you are going to get to a rheumatologist.
I was sorry to read that you had such an awful experience with the internist.
However, as Sweet mentioned, it's unfortunate, but many of us have been through the same...I also have. With one internist, I was really put off with her, but opted to see her "one more time". She turned out to be one of my greatest doctors, so it may have just been an off day for one, maybe both of us, when I saw her that first time!
At any rate, once you see the rheumatologist, maybe that dr will be able to suggest an internist, if you choose to try another.
In the meantime, we are so glad you have chosen us as your Sclero Forum Family!
Please let us know how you are doing!
Posted 12 March 2010 - 08:30 PM
Susie - My boyfriend thought your comment on him so sweet. He is working on getting me a referral and appointment to see a rheumatologist. He has been recommended from another scleroderma patient who has been seeing him for at least ten years. Keeping my fingers crossed. I will keep everyone updated.
Posted 13 March 2010 - 02:13 PM
Your boyfriend is definitely a keeper! I'm glad too that you are going to persevere and see someone else and glad everyone else who had bad experiences before being diagnosed kept trying so we could all be here as Forum friends.
So big hugs to you, the great boyfriend and hey, since we're all in it together, how about a hug for everyone here?! (((((HUGS)))))
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