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Sue Ann: Mother Of A Son With Scleredema


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#1 Judy Devlin

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Posted 08 February 2007 - 08:30 AM

(Update) Sue Ann: Mother of a Son with Scleredema The thickness of his face has improved some. He is planning on getting married in the summer of 2007...

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network
http://www.sclero.or...-judith/en.html
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#2 Shelley Ensz

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Posted 08 February 2007 - 10:08 AM

I just wanted to point out that Judith did not make a typo with "Scleredema" --

Scleredema is an illness similar to scleroderma. It is also known as Scleredema Adultorum, Scleredema Adultorum of Buschke, Scleredema Diabeticorum, and Scleredema Diabeticorum of Buschke. This is a very rare disease. Up to 1965, only two hundred twenty-three cases of scleredema had been reported worldwide.

Read Sue Ann's story for more information and an update on her son's progress.

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.