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Two weeks post kidney transplant

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#1 miocean


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Posted 26 March 2010 - 07:54 AM

I am doing pretty well since my transplant. My blood work is good and carefully monitored. I saw my doctor today and he said I am doing well. My new kidney is working, I am constantly going upstairs to go to the bathroom.

I am still having issues from previous posts. The calcinosis on my buttocks is very painful and there is nothing I can do about it now. I'll have to wait several months before I will be eligible for surgery. Right now I sit on pillows and put up with the pain. The dry cough I had for months which my scleroderma specialist said was probably due to GERD has stopped. Nothing like having surgery to make it go away as it hurts a lot to cough!

The only thing I am concerned about is I am still bleeding from the incision. The ultrasound showed everything to be okay and my doctor doesn't seem to be that concerned. The bleeding has changed from a dark red color to more watery and seems to be slowing down. I know scleroderma makes it harder to heal. I have only had minor cuts over the years and they have done fine. Can anyone share their experience with healing with me? I would really appreciate it. Thanks.

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#2 Shelley Ensz

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Posted 26 March 2010 - 08:40 AM

Hi miocean,

I'm so glad to see an update on your kidney transplant progress.

I know what you mean about drainage from the wound. As you know, my husband had a lung transplant in January. The drainage from his chest was absolutely incredible, for about 3 weeks after transplant. It was so bad, I'd put gauze over the drainage hole and then fold half of a bath towel over it, and then wrap his abdomen/chest to hold it in place. And I'd have to change it many times a day, as it would completely soak through that and onto his clothes.

Then we got a supply of bigger/better gauze pads from the transplant center, and would go through those, a whole bag in a few days. Finally one doctor suggested that we try exposing the drainage hole to the air, to see if that would help heal it. Well, that sure took courage insofar as risking all our furniture and carpeting. We placed a big catch-all bandage underneath it, left the wound open, and waited to see what would happen, while he mostly stayed parked in his easy chair. It started slowing down a bit in a few hours, and within a day or two it had closed itself up.

The thing is, you don't want to try that cute little trick without medical advice, because it is very necessary to get that crud out of your body rather than have it kept in, where the body has to work hard to absorb it. But, after awhile, well. Humph. All I can say is that it was about time, when they gave us the tip on how to, perhaps, close it. They also said that if it continued to drain so much, they could insert a sort of catheter in there, with a drainage bag; I'm not sure, but it sounded like it would be a surgical procedure.

Have you managed to get off the oxygen, since surgery? I'm sorry about the calcinosis, that sounds very painful and I'm sure makes it a bit hard to rejoice about the transplant, when you are still dealing with other painful issues, as well.

We had a similar catch-22 around here, as he had many complications from the drugs, at first, like insulin-dependent diabetes developing overnight, afibs requiring heparin shots and weekly warfarin monitoring, infection in his new lung, and so on and so forth. So there's rejoicing over the oxygen being gone (in his case; dialysis in yours) but then balancing all the other complications and medications, and doctor appointments, on the other hand. Thankfully it's gotten better and better, and now, just a few months later, he is able to truly enjoy many of the benefits of the transplant.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 miocean


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Posted 27 March 2010 - 03:49 AM


Thanks for sharing about Gene's transplant. I am worried about the bleeding but my doctor doesn't seem to be that concerned. Otherwise I am feeling pretty good, not in pain from the surgery anymore and not using oxygen all the time. I do use it when I go to the hospital for labs and to the doctors. I get a little out of breath when going upstairs to the bathroom but it is better than dragging that long hose around and having the cannula up my nose. The bleeding does seem to be easing up and has turned more watery.

I can get my dialysis catheter taken out next week. It will be good to be rid of it. It served me well over the years but limited my activities. I am happy with my new nephrologist, he seems to be on top of things and updates me on my labs and medications frequently. All in all, I feel much better.

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#4 enjoytheride


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Posted 27 March 2010 - 08:50 AM

Miocean- it's good to hear that you are improving.

Best of wishes and (((hugs)))

#5 Deb1million


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Posted 29 March 2010 - 05:26 AM

Hi miocean

I'm very happy to hear that you are recovering well. I hope the dialysis cannula is soon gone.

I haven't logged onto the site for many weeks, and as soon as I saw you had your transplant, I was all smiles for you!

Good luck for a full recovery, and well done for being so positive.

Gentle hugs


#6 barefut


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Posted 29 March 2010 - 06:11 PM

So glad to hear that you are doing so well!
Best of everything to you!