International Scleroderma Network

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Scleroderma Experts
(Worldwide Listings)

Donate in Memory (Others)

Mary Lally

Cordy Mack

Carrie Maddoux

Alan Emahiser

David Woodburn

Matt Kerekes

Anonymous (1)

Clarice Boehmer

Mary Ann Zabel

Fred Nelson

Joe Eberle

Jesse Otzen

William Iannessa

Gene & Shelley Ensz

More Donors...

Join/Shop/Donate!

Dr. Luis Catoggio (Argentina)

Dr. C. Stephen Foster (U.S.)

Dr. Hsiao-Yi Lin (Taiwan)

Dr. Tafazzul Mahmud (Pakistan)

Dr. Matucci-Cerinic (Italy)

Dr. Janet Pope (Canada)

Dr. Shinichi Sato (Japan)

Dr. James Seibold, Chair

Dr. Frank van den Hoogen (Netherlands)

Since 1998, we have complied with the HONcode standard for health trustworthy information: verify here.

Int'l Scleroderma Network is a full-service nonprofit. Check our nonprofit status with Guidestar.org

Please let us know how we can help you.
Warm Hugs,
Shelley Ensz
ISN Founder & President

The most important thing in the world to know about scleroderma is sclero.org.

Home of the International Scleroderma Network (ISN)

We deliver stellar research, support, education and awareness for scleroderma and related autoimmune and skin diseases worldwide, with 2,000+ web pages in 22 languages, for medical professionals and consumers alike.
We are a nonprofit 501(c)(3) public charity, based in the U.S. Help Tackle Scleroderma: Join/Shop/Donate!

Scleroderma Online Survey! Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma. (Password: Scleroderma1) This online survey is about the experience of Scleroderma. We invite people aged 18+ and diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia. (Reposted 04/18/08)

Experts

Worldwide Scleroderma Experts.

Medical

—Juvenile

—Localized: Linear/En Coup

Journals

Scleroderma Care and Research Journal. Free online PDF medical journals; no registration.

Newsroom

Bookmark our Newsroom!

Research

The ISN/SCTC Research Fund supports peer-reviewed international research. Donate Now!

Photos

ISN Photo Repository features pictures of dozens of scleroderma symptoms.

Photo of Gangrene

Forums

Join Sclero Forums for free daily online support!

Recent Discussion

Curling Fingers
Does anyone else have the tips of their fingers curling in? My right index and pincky fingers are really curling in and it is quite noticeable.

Chats!

Join our Sclero Forums Live Chats on Wednesday and Sunday nights.

Newsletter

Join the ISN to get the ISN Insider Newsletter with the latest advances in scleroderma medical and support news! Read this free issue.

Phone Hotline

Ask for our free information packet!

1-800-564-7099

1-952-831-3091

Email Support

English Inquiry Form

Español Inquiry Form

Español/Spanish

MSN grupo de esclerodermia.

Grupo de Apoyo de Venezuela contra la Esclerodermia.

Personal Stories

Personal Stories. Indulge in the world's largest collection of scleroderma patient and caregiver stories!

Recent New Stories

Submit Your Story!

Research

Autoimmune

Causes of Scleroderma

Clinical Trials

History of Sclero.

Scleroderma Medical Experts, Worldwide

Newsroom

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ISN Newsfeed

ISN's RSS newsfeed:

ISN Book Series

ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories!

ISN Brochures

What is Scleroderma?

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School Reports

School Report Resources! Raise awareness by doing reports, speeches and presentations with these resources.

Support Groups

Translations and Countries

Worldwide Support Groups

Volunteers

ISN Global Virtual Volunteers operate our nonprofit agency and this web site, which began as a grassroots outreach among patients, physicians, and translators in January 1998. Read our profiles!

New ISN Affiliates

Do you want to start a new support group, or affiliate your existing group or organization with the ISN? If so, please contact us.

ISN Affiliates

Asociación Colombiana de Esclerodermia led by Francisco Castellanos

Grupo de Apoyo de Venezuela contra la Esclerodermia led by Matilde Acosta

Warm Hugs

"People don't care how much you know until they know how much you care," is a guiding principle for the ISN.

Please let us know how we can help!

Warm Hugs,

Shelley Ensz

Founder & President

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Contact ISN

Email	Postal Mail	Phone
Inquiry Form (English)	Mail-In Donation/Order Form	Online Donation/Order Form
Inquiry Form (Spanish)	Website: www.sclero.org	Please contact us in English.
Email: isn@sclero.org webmaster@sclero.org Or post a message in ISN's Sclero Forums for free well-moderated support and information, 24 hours a day!	International Scleroderma Network 7455 France Ave So #266 Edina, MN 55435 USA	Toll Free Hotline in U.S. 1-800-564-7099 Direct Line 1-952-831-3091
Arranging a Memorial, Fundraiser, Special Donation or P.R.?
We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter. Please help raise awareness of scleroderma and related illnesses by mentioning the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.

Thank you for helping us tackle scleroderma worldwide!