| ISN's
Voices of Scleroderma Book Series |
| Books
feature the stories from sclero.org! |
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| ISN's
Voices of Scleroderma Volume 1 Book |
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| Availability
by Country and Currency |
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| Story topics include Caregivers and Survivors, Difficult
Diagnosis, Diffuse
Scleroderma, CREST, Limited
Scleroderma, Linear/Localized, Morphea, Overlap
and MCTD, Lupus, UCTD, Pulmonary
Fibrosis, Fibromyalgia,
Polymyositis, and Juvenile
Scleroderma (just to name a few!) |
| For a complete listing
of other places to buy these books, for individuals,
booksellers and libraries, by country and currency,
see Voices
of Scleroderma: Availability by Country/Currency. |
Order through your favorite library or bookseller:
Voices
of Scleroderma Volume 1
ISBN 0-9724623-0-9
Library of Congress Control Number (LCCN): 2004105617
by the International Scleroderma Network
Editors, Judith R. Thompson and Shelley L. Ensz |
| Voices of Scleroderma Volume 1offers 104 stories altogether;
in English (91 stories), Greek (1), Italian
(10), Polish (1) and Romanian (1) along
with an English translation for each story. ISN
English translators for the stories in the book
include Dr.
Magdalena Dziadzio, Kevin
Howell, Krista
Lurtz, and Dimitra
Stafilia. |
| Story authors are from 16
countries: Australia, Canada, Greece, England,
India, Italy, Iran, Jordan, New Zealand, Norway,
Pakistan, Peru, Poland, Puerto Rico, Romania, and
32 states in the United States. |
| The Introduction to Scleroderma
is by renowned scleroderma expert Dr. Joseph Korn, who passed away shortly after the first edition of this book was published.
Volume One also features articles by Dr. Magdalena
Dziadzio, Dr. Thomas Lehman, Dr. Asim Iqbal, and Gary
Barg. |
| .Dr.
Joseph Korn was Chief of the Rheumatology Section
of the Boston University Arthritis Center. He was
a highly renowned scleroderma expert with many research
studies and professional publications to his credit.
His lead-in article for Volume 1, entitled "Introduction
to Scleroderma", clearly explains this complex
disease. |
| Dr.
Magdalena Dziadzio is Medical Advisory Chair
of the International Scleroderma Network. She obtained
her medical degree in Poland. She currently works
in the Department of Internal Medicine, University
of Ancona, Italy. She developed her knowledge about
scleroderma working with Prof. Carol Black and her
team at the Department of Rheumatology, Royal Free
Hospital, London. |
| Dr.
Thomas Lehman is Chief of the Division of Pediatric
Rheumatology for The Hospital for Special Surgery
in New York. He is a widely recognized expert in
the field of Juvenile Scleroderma, which is any form
of scleroderma that onsets during childhood. Dr.
Lehman clearly explains Juvenile Scleroderma in the
introduction for the chapter of juvenile scleroderma
patient and caregiver stories. |
| Dr.
Asim Iqbal Qureshi is with the Department of
Obstetrics and Gynecology at Nishtar Hospital in
Multan, Pakistan. He is also the creator of the online
presentation for Scleroderma & Pregnancy.
He developed that presentation for his department
over their concern for a pregnant scleroderma patient.
In this book, Dr. Iqbal shares his story about the
case of the unfortunate fetus. |
| Gary
Barg is editor-in-chief of Today's Caregiver
Magazine, and founder of Caregiver.com. He is a very
sought-after keynote speaker for many conferences
on health and caregiving. His first-hand experience
as a caregiver is parlayed into a fine introduction
to our chapter of caregiver and survivor stories. |
| Ione Bridgman,
ISN Artist, painted the fabulous lighthouse for
the cover of Voices of Scleroderma Volume 1. Sherrill
Knaggs, ISN Artist, created the digital image
from Ione's painting. |
| Judith
Rose Thompson, co-editor, is ISN Archive Committee
Chair. She is the author of three fiction novels.
Her latest novel, Mind Blindness, was released in
July 2002. Judith volunteered to preserve the sclero.org
stories and to create this book series to benefit
the International Scleroderma Network. |
| Shelley
Ensz is also co-editor of the book. She is Founder
and President of the International Scleroderma Network,
the Scleroderma from A to Z website and the Scleroderma
Webmaster's Association. |
| Voices of Scleroderma Volume 1is available through Amazon, and you can
preview the Table of Contents and Index with the
Amazon "search inside" feature! |
| Need currency
conversion? Voices of Scleroderma Volume 1 is
also available through Abebooks.com,
with international currency conversion rates. Put the
book in their "Shopping Basket". Then underneath
the "Price" field you will see "Convert
Currency" and it will give the currency conversion
rate that day. |
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| Click
here to order the Voices of Scleroderma books through Abebooks.com. |
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| Keep on Surfing! | | Go to Voices
of Scleroderma: Volume 2 | |
