| Voices
of Scleroderma Volume 2 |
| Voices of Scleroderma Volume 2by
the International Scleroderma Network. Editors Judith
Thompson Devlin and Shelley
L. Ensz. |
 |
What
is scleroderma really like?! That's
a very tough question since scleroderma symptoms
and progression vary greatly from patient to
patient!
That's why we invited over 100 scleroderma patients,
caregivers and leading scleroderma experts throughout
the world to explain what scleroderma to answer
your questions in gripping, touching and educational
articles in Voices of Scleroderma Volume 2. |
|
| Contributing professionals
for Voices of Scleroderma Volume 2include Professor
Carol Black, Dr. Christopher Denton, Dr.
L. Nandini Moorthy, Dr.
James Seibold, Dr.
Maria Trojanowska, Kevin
Howell, and Dr.
Vanessa Malcarne. |
| For a complete worldwide
listing of other places to buy these books, for individuals,
booksellers and libraries, by country and currency, see Voices
of Scleroderma: Availability by Country/Currency. |
| Professor
Carol Black, MD, FRCP, CBE, is the Director of
the Department of Rheumatology at Royal Free Hospital
in London, England, and a renowned expert in scleroderma.
The department has an active research program. For
her lifetime work she was recently honored with the
prestigious award of Commander of the British Empire.
Professor Black is also President of the Royal College
of Physicians in London. She cares deeply about her
patients and is held in the highest esteem by her staff. |
| Dr.
Maria Trojanowska is Associate Professor, Division
of Rheumatology and Immunology at the Medical University
of South Carolina. The main area of research in her
laboratory is regulation of extracellular matrix (ECM)
deposition in healthy tissues and its dysregulation
in diseases. |
| Kevin
Howell is a Clinical Scientist for Professor Black
at the Royal Free Hospital in London. He began working
in the field of scleroderma in 1991, and uses the techniques
of capillaroscopy and infrared thermography. |
| Dr.
Vanessa Malcarne is an Associate Professor in Psychology
at San Diego State University (SDSU). She is also a
core member of the graduate faculty of the SDSU/UCSD
Joint Doctoral Program in Clinical Psychology, and
a member of the Moore NCI Comprehensive Cancer Center
at UCSD. Her research focus is adjustment to chronic
illness in patients, spouses, and children. |
| Dr.
L. Nandini Moorthy is an Assistant Professor of
Pediatrics at UMDNJ/Robert Wood Johnson Medical School
in New Jersey. As a pediatric rheumatologist, she is
interested in taking care of children and improving
their quality of life. |
| Dr.
James R. Seibold is Professor of Internal Medicine
and Director of the University of Michigan Scleroderma
Program in Ann Arbor, Michigan, USA. He is also Chair
of the ISN Medical Advisory Board. |
| Judith
Thompson Devlin, co-editor, is ISN Archive Committee
Chair. Judith volunteered to preserve the sclero.org
stories and to create this book series to benefit the
International Scleroderma Network. |
| Shelley
Ensz is also co-editor of the book. She is Founder
and President of the International Scleroderma Network,
the Scleroderma from A to Z website, the Scleroderma
Webmaster's Association, and of EdinaWebDesign.com. |
| Ione
Bridgman, ISN Artist, painted the fabulous lighthouse
for the cover of . Voices of Scleroderma Volume 2. Sherrill
Knaggs, ISN Artist, created the digital image from
Ione's painting. |
|
| New ISN Giftshop
for Voices of Scleroderma Volume 2 |
 New
ISN Giftshop for Voices of Scleroderma Volume 2. The
lovely book cover for Volume 2, which was painted
by ISN Artist Ione Bridgman, graces the many items
in our new giftshop, with "sclero" gifts
for people of all ages. This is a wonderful way to
raise awareness of scleroderma and our book series.
Books sold separately—see Availability
of Voices of Scleroderma book series for worldwide
and online outlets! New Shop, 3-17-05. |
| Voices
of Scleroderma Volume 2 Complimentary Books Shipped! |
 Judith
Thompson Devlin, co-editor of the Voices of Scleroderma
book series, signed and shipped 125 complimentary
copies of Voices of Scleroderma Volume 2,
which were mailed out on September 16, 2004.
These signed copies of the first edition were sent
to everyone who contributed a story or worked on Volume
2. This tremendous book features top notch medical
and support information for scleroderma. Posted
09-22-04. |
 |
Judith
Thompson Devlin Signing Books, Sept. 2004
Signed complimentary books were shipped 09-16-04
to all
authors and story contributors for Voices of Scleroderma Volume 2 |
