Respond to web site inquiry emails on a daily basis, providing our standard emails as well as trying to answer specific questions for concerned doctors, patients, and family members
This position is vital for helping to provide quality scleroderma support and information for those affected by scleroderma throughout the worldOur email support specialists reply to all our site inquiry emails in a prompt, thorough and courteous manner
Virtual VolunteerCandidate would work entirely from their own home via computerTherefore they must have their own computer with Internet access
Approximately 10 hours per week on a regular basis, hours and schedule to be determined by volunteer and coordinated with managerPrompt, daily turnaround is vital for this position
ISN Support Manager (an open position) and to ISN Volunteer Services manager until that position is filled
Candidate must be able to read and write English, with excellent spelling and composition skills.
The International Scleroderma Network (ISN) is an international nonprofit 501(c)(3) agency founded in MinnesotaWe provide healthcare information and support via our 5,000+ page SCLERO.ORG website in 23 languagesWe publish the Voices of Scleroderma book series, and we support international research efforts for scleroderma.
Scleroderma is a rare arthritis/autoimmune disease that is popularly known as the "disease that turns people to stone" because it causes a hardening of the skin, blood vessels and/or internal organs.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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