ISN Volunteer Position Description: Publications Manager

If you are interested in applying for any volunteer position with the nonprofit International Scleroderma Network, or if you have further questions about any position or possible openings, please email [email protected]

Title: ISN Publications Manager

To develop and manage a virtual volunteer team of editors, desktop publishers and writers in creating external and internal publications for the nonprofit International Scleroderma Network, in English and many foreign languages


Position currently closed

Position Summary

This position is vital for helping to provide quality scleroderma medical, support, and awareness information throughout the world

Position Type

Virtual VolunteerCandidate would work entirely from their own home via computerTherefore they must have their own computer with Internet access as well as Microsoft software and PageMaker desktop publishing software

Time Commitment

Approximately 20 hours per week on a regular basis, hours and schedule to be determined by volunteer

Position Reports To

ISN PresidentEventually, may report to ISN PR/Marketing Manager (an open yet unposted position)

Language Requirements

Candidate must be able to read and write English

General Responsibilities

This area is responsible for helping to define organization publication standards and conventions and seeking approval for publications and standards from the ISN Board of DirectorsOversee the creation and maintenance of Intranet library resources and desktop references for use throughout the organization

Candidate must have exceptionally strong editing skills (in English) for final proofreading of all documents and publications before reviews and distribution

International Scleroderma Network (ISN)

The International Scleroderma Network (ISN) is an international nonprofit 501(c)(3) agency founded in MinnesotaWe provide healthcare information and support via our 5,000+ page web site in 23 languagesWe publish the Voices of Scleroderma book series, and we support international research efforts for scleroderma

Scleroderma is a rare arthritis/autoimmune disease that is popularly known as the "disease that turns people to stone" because it causes a hardening of the skin, blood vessels and/or internal organs

Essential Functions

  1. Develops and supervises a virtual team of editors, desktop publishers, graphic artists and writers
  2. Coordinates requests for new and revised internal and external documents and publications (policy and procedure manuals, newsletters, marketing materials, books, medical journals, brochures, pamphlets, etc)
  3. Develops a consistent format and appearance for all published materials through approved publication standards and conventionsMaintains and distributes these to the publications team and throughout the organization
  4. Develops and coordinates all publication project plan schedules including reviews and distribution
  5. Coordinates all printing requirements whether completed in-house or with an outside provider
  6. Proofreads and edits text for correct grammar, spelling, punctuation, concise and easy to understand language before distribution for reviews and final fulfillment
  7. Works closely with ISN Volunteer Services in identifying viable candidates to fill open positions as required

General Requirements

  1. Requires exceptionally strong teamwork and people skills for selecting, training and supervising an international team of virtual volunteer editors, desktop publishers, and writers
  2. Demonstrated ability to plan and organize publication project plans
  3. Ability to motivate a team to work within the established deadlines of a publication schedule
  4. Disciplined and committed in completing projects within the requested timeframe
  5. Willing to learn a great deal about scleroderma and related autoimmune symptoms as well as medical and pharmacological terms for best editing accuracy


  1. Strong education and experience as a project manager for a publications area or virtual team of editors, desktop publishers, and writers
  2. Exceptional attention to detail and experience in developing realistic and achievable publication project plans
  3. Demonstrated ability to successfully complete projects within requested timeframes
  4. Ability to use own computer with Microsoft software products, PageMaker and email to receive and distribute work and drafts
Go to Position Description: Support Specialist
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
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Edina, MN 55435-4702 USA

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