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| How to Volunteer for ISN |
| 1. Inquire about openings |
| Email Volunteer Services |
| 2. And/or send in your app. |
| ISN Volunteer Application |
| 3. If offered a position, sign |
| ISN Volunteer Agreement |
| 4. Submit your profile page |
| ISN Representatives Form |
| Active Volunteers |
| A-C |
| Abati, Angela |
| Acosta, Matilde |
| Aron, Torok |
| Balbir-Gurman, Dr. Alexandra |
| Barg, Gary |
| Becker, David |
| Black, Professor Carol |
| Bridgman, Ione |
| Bulman, Lisa |
| Carina, Iona |
| Castellanos, Francisco |
| Castro, Ana Celia |
| Catoggio, Dr. Luis |
| Czirják, Dr. László |
| D-F |
| Davidoff, Dina |
| Devlin, Judith Thompson |
| Dickson, Stephen |
| Distler, Dr. Oliver |
| Doom, Sheryl |
| Elsanousi, Dr. Yasir |
| Ensz, Shelley |
| Ensz, Gene |
| Falcini, Dr. Fernanda |
| Foster, Dr. C. Stephen |
| G-I |
| Hasegawa, Maki |
| Hopkins, Linda |
| Howell, Kevin |
| Ionescu, Tudor |
| Iqbal, Dr. Asim |
| Irvin, Dr. Liz |
| J-K |
| Jackson, Jie |
| Jun, Dr. Jae-Bun |
| Justis, Serena |
| Kalender, Dr. Mehmet |
| Kraft, Susie |
| Kurzen, Françoise |
| L |
| Langenfeld, Carol |
| Lamoli-Torres, Edwin |
| Le Gendre, Susan |
| Lehman, Dr. Thomas |
| León, Alba |
| Lin, Dr. Hsiao-Yi |
| Lowe, Barbs |
| Lowe, Wayne |
| Lurtz, Krista (Romanian) |
| M |
| Maddoux, Carrie |
| Magnani, Gwen |
| Mahmud, Dr. Tafazzul |
| Makarov, Yelena |
| Malcarne, Dr. Vanessa |
| Manns, Earl |
| Matucci-Cerinic, Dr. Marco |
| McClelland, Jeannie |
| Mens, Ans |
| Miniati, Dr. Irene |
| Molitor, Dr. Jerry |
| Moorthy, Dr. L. Nandini |
| Mouthon, Dr. Luc |
| Müller-Ladner, Dr. Ulf |
| Myohanen, Emmi |
| N-Q |
| Novotny, Jordana |
| Piché, Susanne |
| Pope, Dr. Janet |
| R-S |
| Roar, Penny |
| Roland, Pamela |
| Sato, Dr. Shinichi |
| Seibold, Dr. James R. |
| Seminara, Lynda |
| Simms, Dr. Robert |
| Smith, Dr. Roy |
| Sralla, Patty S. |
| Sridharan, Banumathy |
| Stafilia, Dimitra |
| Strong, Sandy |
| Strong, Sid |
| T-Z |
| Thorpe, Amanda |
| Trojanowska, Dr. Maria |
| Van den Hoogen, Dr. Frank |
| Varghese, Tony |
| Volz, Lisa |
| Willis, Janey |
| Ydler, Luis |
| Active: Need Rep Form |
| These active volunteers (including contributing experts for our books) are invited to have an ISN profile page made by submitting an ISN Representatives Form. |
| Castro, Ana Celia |
| Duminey, Marthie |
| Falcini, Dr. Fernanda |
| Ionescu, Tudor |
| Langenfeld, Carol |
| Lin, Dr. Hsiao-Yi |
| Lurtz, Krista |
| Mens, Ans |
| Molitor, Dr. Jerry |
| Van den Hoogen, Dr. Frank |
| Ydler, Luis |
| Inactive Volunteers |
Inactive Volunteers:
On Leave of Absence |
| These people are on leave of absence. Please keep in touch. |
| Nolan, Heidi |
Inactive Volunteers:
Need Update |
| Our emails to you have bounced. You may reactivate, retire, or take a leave of absence. Please email us ! |
| Jacques, Jaqueline |
| Magnani, Gwen |
| Mundargi, Kishori |
| Wanzala, Justus Bahati |
| Retired Volunteers |
| Retired volunteers can reactivate by emailing us. Here is a partial listing: |
| Cotton, Lizzy |
| Gardner, Bunny |
| Hassan, Yunus |
| Hunt, Dee Dee |
| Passoni, Gianalberto |
| Patane, Christine |
| Sadiq, Saba |
| Scriber, Merrié |
| Soto, Carol |
| Stanley, Erin |
| Young, Sherry Jo |
| In Loving Memory |
| ISN Volunteers who have passed away include: |
| Carpenter, Jill |
| Korn, Dr. Joseph |
| Knaggs, Sherrill |
| Tarro, Judy |
| Heartfelt Thanks |
| If you have ever served the cause of scleroderma in any way, anywhere in the world, we thank you tremendously! |
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| Board of Directors |
| Founder and President |
| Ensz, Shelley |
| Vice President |
| Ensz, Gene |
| Board Member |
| Strong, Sandy |
| Board Member |
| Strong, Sid |
| Board Member |
| Varghese, Tony |
| Board Advisors |
| Legal Advisor |
| Hopkins, Linda |
| Medical Advisory Chair |
| Dr. James R. Seibold |
| Development/Fundraising |
| Development Director |
| Open Position. Apply. |
| Grant Writing |
| Novotny, Jordana |
| Fundraisers |
| Bulman, Lisa |
| Manns, Earl |
| Open Positions. Apply. |
| Medical Advisory Board |
| Chair |
| Seibold, Dr. James R. |
| Directors |
| Catoggio, Dr. Luis |
| Distler, Dr. Oliver |
| Foster, Dr. C. Stephen |
| Lin, Dr. Hsiao-Yi |
| Mahmud, Dr. Tafazzul |
| Matucci-Cerinic, Dr. Marco |
| Molitor, Dr. Jerry |
| Mouthon, Dr. Luc |
| Müller-Ladner, Dr. Ulf |
| Pope, Dr. Janet |
| Sato, Dr. Shinichi |
| Simms, Dr. Robert |
| Van den Hoogen, Dr. Frank |
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| Newsroom |
| News Director |
| Willis, Janey |
| News Guide, Scleroderma |
| Willis, Janey |
| News Guide, Autoimmune |
| Becker, David |
| News Guide, Media News |
| Willis, Janey |
| Assistant News Guides |
| Bulman, Lisa |
| McClelland, Jeannie |
| RSS News Feed |
| Dickson, Stephen |
| Publishing |
| Publishing: Books |
| We publish the Voices of Scleroderma book series! |
| Chair of Archivist Committee |
| Devlin, Judith Thompson |
| Co-Editors |
| Devlin, Judith Thompson |
| Ensz, Shelley |
| Senior Editors |
| Dock, Maia |
| Seminara, Lynda |
| Stanley, Erin |
| Contributing Experts |
| Barg, Gary |
| Black, Professor Carol |
| Castellanos, Francisco |
| Czirják, Dr. László |
| Dziadzio, Dr. Magdalena |
| Falcini, Dr. Fernanda |
| Howell, Kevin |
| Iqbal, Dr. Asim |
| Korn, Dr. Joseph (In Memory) |
| Langenfeld, Carol |
| Lehman, Dr. Thomas |
| Mahmud, Dr. Tafazzul |
| Malcarne, Dr. Vanessa |
| Matucci-Cerinic, Dr. Marco |
| Miniati, Dr. Irene |
| Moorthy, Dr. L. Nandini |
| Seibold, Dr. James R. |
| Trojanowska, Dr. Maria |
| Artists and Illustrators |
| Bridgman, Ione |
| Ensz, Shelley |
| Knaggs, Sherrill (In Memory) |
| Tarro, Judy (In Memory) |
| Volz, Lisa |
| Distribution |
| Patane, Christine |
| Book PR in U.S. |
| Open Positions. Apply. |
| Friedman, Marsha |
| Book PR in U.K. |
| Lowe, Wayne |
| Dickson, Steve (for interviews) |
| Lowe, Barbs (for interviews) |
| Translators |
| Many ISN Translators also worked on our book series. |
| Publishing: Brochures |
| Desktop Publisher |
| Piché, Susanne |
| Publishing: Newsletter |
| ISN Members receive our ISN Insider Newsletter! |
| Newsletter Editor |
| Sralla, Patty |
| Desktop Publisher |
| Piché, Susanne |
| Senior Editor |
| Seminara, Lynda Garry |
| Columnists |
| Castellanos, Francisco |
| Devlin, Judith Thompson |
| Maddoux, Carrie |
| Seibold, Dr. James R. |
| Willis, Janey |
| ISN Affiliate Support Organizations |
| ISN Affiliates |
| Bogota, Colombia |
| Castellanos, Francisco |
| Trinidad and Tobago |
| Le Gendre, Susan |
| United Kingdom |
| Thorpe, Amanda |
| Venezuela |
| Acosta, Matilde |
| Support Groups/Affiliates |
| Do you want to start an ISN support group or affilaite with us? Open Positions. Apply. |
| Support: Email |
| Email Support (English) |
| Open Position. Apply. |
| Support: Forums |
| Our free ISN Sclero Forums delivers terrific online support! |
| Director |
| Maddoux, Carrie |
| Manager |
| McClelland, Jeannie |
| Assistant Manager |
| Bulman, Lisa |
| Support Specialists |
| Acosta, Matilde (Venezuela Subforum) |
| Castellanos, Francisco (Colombia Subforum) |
| Doom, Sheryl |
| Kraft, Susie |
| Roland, Pamela 'Sweet' |
| Thorpe, Amanda (U.K. Subforum) |
| Willis, Janey |
| Blog Manager |
| Maddoux, Carrie |
| Bloggers |
| Justis, Serena 'Barefut' |
| Lowe, Barbs |
| Roar, Penny |
| Chat Manager |
| Maddoux, Carrie |
| Chat Host |
| Doom, Sheryl |
| Kraft, Susie |
| Support: Phone |
| Hotline Phone Support (English) |
| Ensz, Shelley |
| Roland, Pamela 'Sweet' |
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| Translations/Countries |
| Translation Team Manager |
| Open Position. Apply. |
| Afrikaans/South Africa |
| Email Support |
| Marthie Duminey |
| Arabic |
| Elsanousi, Dr. Yasir |
| Bahasa Malaysia |
| Hassan, Yunus |
| Canada |
| Medical Advisory Board |
| Pope, Dr. Janet |
| Chinese |
| Jackson, Jie |
| Deutsche (German) |
| Ionescu, Tudor |
| Medical Advisory Board |
| Müller-Ladner, Dr. Ulf |
| Español (Spanish) |
| Medical Advisory Board |
| Catoggio, Dr. Luis |
| Translators |
| León, Alba |
| Lamoli-Torres, Edwin |
| Support Group Leader |
| Castellanos, Francisco |
| Français (French) |
| Kurzen, Françoise |
| Email Translator |
| Ydler, Luis |
| Finnish |
| Myohanen, Emmi |
| Greek |
| Stafilia, Dimitra |
| Hebrew |
| Davidoff, Dina |
| Hungarian |
| Aron, Torok |
| Indonesian |
| Carina, Iona |
| Israel |
| Balbir-Gurman, Dr. Alexandra |
| Italiano (Italian) |
| Medical Advisory Board |
| Matucci-Cerinic, Dr. Marco |
| Italian Guide |
| Abati, Angela |
| Translators |
| Abati, Angela |
| Howell, Kevin |
| León, Alba |
| Japanese |
| Medical Advisory Board |
| Sato, Dr. Shinichi |
| Translators |
| Hasegawa, Maki |
| Yoko |
| Kannada |
| Mundargi, Kishori |
| Korean |
| Jun, Dr. Jae-Bun |
| Magyarul(Hungarian) |
| Aron, Torok |
| Nederlands(Dutch) |
| Medical Advisory Board |
| Van den Hoogen, Dr. Frank |
| Translators |
| Mens, Ans |
| Pakistan |
| Medical Advisory Board |
| Mahmud, Dr. Tafazzul |
| Polski(Polish) |
| Email Translator |
| Ydler, Luis |
| Português |
| Castro, Ana Celia |
| Romana |
| Lurtz, Krista (Romanian) |
| Russian |
| Balbir-Gurman, Dr. |
| Makarov, Yelena |
| Switzerland |
| Medical Advisory Board |
| Distler, Dr. Oliver |
| Taiwan |
| Medical Advisory Board |
| Lin, Dr. Hsiao-Yi |
| Tamil |
| Sridharan, Banumathy |
| Trinidad and Tobago |
| Le Gendre, Susan |
| Turkish |
| Kalender, Dr. Mehmet |
| United Kingdom |
| Thorpe, Amanda |
| Website |
| SCLERO.ORG |
| Webmaster |
| Ensz, Shelley |
| Assistant Webmaster |
| Willis, Janey |
| Project Manager |
| Varghese, Tony |
| Open Positions: Must know Dream-weaver MX. Apply. |
| Page Guides |
| Irvin, Dr. Liz |
| Willis, Janey |
| Website Story Editors |
| Devlin, Judith Thompson |
| Website Story Artists |
| Bridgman, Ione |
| Ensz, Shelley |
| Tarro, Judy |
| Volz, Lisa |
| Scleroderma Webmaster's Association (SWA) |
| SWA Founder and President |
| Ensz, Shelley |
| Ways You Can Help |
| Apply to Volunteer |
| Become an ISN Member |
| Buy an ISN Book! |
| Donate (General) |
| Donate in Memory |
| Medical Information |
| Submit Your Story |
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| Keep on Surfing! |
| Go to Acosta, Matilde |
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