ISN: Professor Carol Black

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Professor Carol Black, MD, FRCP, CBE

ISN Featured Expert in Voices of Scleroderma Volume 2

Professor Carol Black, MD, FRCP, CBE, is the Director of the Department of Rheumatology at Royal Free Hospital in London, England, and a renowned expert in scleroderma. The department has an active research program.

For her lifetime work she was recently honored with the prestigious award of Commander of the British Empire. Professor Black is also the newly elected President of the Royal College of Physicians in London.

She cares deeply about her patients and is held in the highest esteem by her staff. Professor Black is the featured scleroderma expert for the ISN's book Voices of Scleroderma Volume 2, which was released in August 2004. See Availability of Voices of Scleroderma Books by Country and Currency.

Voices of Scleroderma Volume 1was released in May 2003. It features over 100 stories from this sclero.org website, from 16 countries and in five languages (with all stories available in English.)

Related Links

Female medics receive top honours. Two leading female medical experts have been made Dames in the Queen's birthday honours list. As president of the Royal College of Physicians, Professor Carol Black has worked to improve collaboration between doctors and patient representatives. She is also an international authority on the rheumatic disease systemic sclerosis (scleroderma). BBC News 06/10/05.

Raynaud's Awareness Month. February 2005. Raynaud's affects 10 million people in the UK, 9 out of 10 being female. Quote from Professor Carol Black CBE: "Raynaud's Phenomenon is a long-term condition that causes distress, discomfort and often loss of function, thus affecting both professional and private life." UK Raynaud's and Scleroderma Association. Feb. 2005. (Also see: Raynaud's Support and UK Support Groups)

Gazea: Diffuse Scleroderma I would like to at least try to suggest a small ray of hope for other sufferers of diffuse scleroderma...

Internet as a Tool for Patient Support Groups to Provide Quality Information. AIM: To compare the inquiries received by the Scleroderma Society (SS), UK with those received by the International Scleroderma Network (ISN). Worldwide collaboration of medical professionals with patient organisations should lead to a better understanding of clinical needs and better support. Web presence and e-mail contacts should be used by patient organisations in order to improve the quality and availability of support. M. Dziadzio. SL0003 EULAR 2004. (Also see: ISN, Dr. Magdalena Dziadzio, Dr. Roy Smith, and Shelley Ensz)

Scleroderma-clinical and pathological advances. Skin sclerosis is no longer regarded as mandatory for the diagnosis of systemic sclerosis. It is likely that clinical trials performed over the next few years will transform the management of systemic sclerosis and help to dispel its reputation as one of the least treatable of the autoimmune rheumatic diseases. PubMed. Best Pract Res Clin Rheumatol. 2004 Jun;18(3):271-90. (Also see: Diffuse Scleroderma and Limited Scleroderma)

Bosentan for Scleroderma Associated Pulmonary Arterial Hypertension - A Subgroup Analysis of Two Placebo Controlled Trials. In patients with PAH/SSc, without moderate or severe interstitial disease, bosentan increased exercise capacity to a similar extent to that observed overall in PAH for all causes. Christopher P. Denton, Carol M. Black. ACR Conference Oct. 2003. (Also see: Pulmonary Hypertension)

A Pilot Database Analysis of Enquiries Submitted to the Medical Committee of an International Scleroderma Website This pilot database analysis identifies the main areas of information that should be available to those affected by, or working with, scleroderma. Magdalena Dziadzio FRI0078 EULAR 2003. (Also see: ISN, Dr. Magdalena Dziadzio, Dr. Roy Smith, and Shelley Ensz)

Progress in Scleroderma during the past 20 years: Part 1. Scleroderma is a little like a cube: multidimensional, multifaceted and very difficult to solve. It’s not just a question of finding the cause because there are a large number of factors that interact to give someone scleroderma. Professor Carol Black CBE, At the 20th Anniversary of The Scleroderma Society, 5th October, 2002.

Progress in Scleroderma during the past 20 years: Part 2. Scleroderma is a disease that can be triggered by external factors and therefore the history that patients give you is important. Professor Carol Black CBE, At the 20th Anniversary of The Scleroderma Society, 5th October, 2002.

CBE for Professor Carol Black, medical director of The Royal Free Hampstead NHS Trust, has been named CBE (Commander of the British Empire) by Queen Elizabeth II in the 2002 New Year's Honours List. She has received the honor for research and clinical care in scleroderma and fibrotic disorders. Originally published in Royal Free Hamstead 2002.

Professor Carol Black CBE MD FRCP FACP F Med Sci has been elected President of the Royal College of Physicians Royal College of Physicians 3-25-02

Pulmonary hypertension in systemic sclerosis. The next major challenge is to improve diagnosis and treatment of early stage or presymptomatic pulmonary hypertension with the goal of preventing this important cause of premature SSc-related mortality. PubMed. Rheum Dis Clin North Am. 2003 May;29(2):335-49, vii.

Scleroderma Clinical Trials Consortium SCTC

Systemic Sclerosis, State of the Art. The aetiopathogenesis of scleroderma is complex, but modern genetic approaches have provided the tools with which to address the most vexing aspects of the pathology, namely the overproduction of extracellular matrix by connective tissue fibroblast. C. Black. SP0174 EULAR 2003 (Also see: Causes of Scleroderma: Genetics)

Voices of Scleroderma: Volume 2 features 100 scleroderma patient and caregiver stories in five languages. Professional contributors include Professor Carol Black, Dr. Maria Trojanowska, Kevin Howell, and Dr. Vanessa Malcarne.