Hello, my name is Judith Thompson Devlin, and I am Chair of the ISN Archive Committee.
As part of my archivist duties, I am compiling patient and caregiver stories from the SCLERO.ORG website for the Voices of Scleroderma book series. I am also an ISN Story Editor for the SCLERO.ORG Website stories.
I was diagnosed with CREST in 1991, and retired on disability in 1992. I have seven siblings, and a married daughter, and grandson. I live in Concord, New Hampshire.
I recently published my third novel, Mind Blindness, a political thriller. I enjoy reading, writing, my computer, politics, and volunteering for ISN. I have a passion for finding a cure for scleroderma.
I enjoy the camaraderie, support and friendships that have come as a result of volunteering with this awesome group of people. This has been the best medicine for my body, heart and soul! 'Just what the doctor ordered!'
I am also the ISNmart Guide. I developed and manage the new ISNmart online shop on CafeShops, which features ISN and scleroderma imprinted promotional items such as tee shirts (all sizes up to 3-X-Large), clocks, teddy bears and aprons. New designs and items will be added to the shop regularly so please visit the store often and promote the ISN and scleroderma everywhere you go!
My personal story is online, Judy Rose Thompson Devlin: CREST. In October 2010, I retired as an ISN volunteer for health reasons. I am in a palliative care program, which is wonderful. I have lobbied for inclusion of information about palliative care on this web site, which my dear friend Shelley gladly added. I hope that everyone gets the care they need at each stage of this disease, and send all my good wishes to everyone.