Shelley Ensz

Founder and President of the International Scleroderma Network

I wish I could say "Thank You" in 23 languages!

Shelley EnszI'm thrilled with the fabulous team spirit of our international scleroderma community!

From our launch on January 21, 2002, the nonprofit International Scleroderma Network (ISN) has been blessed with dozens of highly talented virtual volunteers who lend their expertise and open their hearts to those affected by scleroderma and related illnesses, throughout the world.

The ISN is a fitting outgrowth of the SCLERO.ORG website that I launched on January 7, 1998. From one humble page of scleroderma links, it has blossomed to over 5,000 pages in 23 languages. This has been made possible with dozens of amazing worldwide volunteers.

The ISN is dedicated to empowering people who are interested in scleroderma, by tackling stellar global research, support, education and awareness for scleroderma and related illnesses.

Our trilogy, Voices of Scleroderma book series features over 100 unique patient and caregiver stories and articles by scleroderma experts, in five languages, from 16 countries, in every volume.

I'm Founder and President of the International Scleroderma Network (ISN), the SCLERO.ORG website, Sclero Forums, the Scleroderma Webmaster's Association (SWA), and co-editor of the Voices of Scleroderma book series along with Judith Thompson Devlin.

I am also an ISN Webmaster, and an ISN Artist. My drawings, paintings, and photography illustrate many of the medical and patient stories on this site.

Go to Foster, Dr. C. Stephen
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

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