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Shelley Ensz

Founder and President of the International Scleroderma Network

I wish I could say "Thank You" in 23 languages!

Shelley EnszI'm thrilled with the fabulous team spirit of our international scleroderma community!

From our launch on January 21, 2002, the nonprofit International Scleroderma Network (ISN) has been blessed with dozens of highly talented virtual volunteers who lend their expertise and open their hearts to those affected by scleroderma and related illnesses, throughout the world.

The ISN is a fitting outgrowth of the SCLERO.ORG website that I launched on January 7, 1998. From one humble page of scleroderma links, it has blossomed to over 5,000 pages in 23 languages. This has been made possible with dozens of amazing worldwide volunteers.

The ISN is dedicated to empowering people who are interested in scleroderma, by tackling stellar global research, support, education and awareness for scleroderma and related illnesses.

Our trilogy, Voices of Scleroderma book series features over 100 unique patient and caregiver stories and articles by scleroderma experts, in five languages, from 16 countries, in every volume.

I'm Founder and President of the International Scleroderma Network (ISN), the SCLERO.ORG website, Sclero Forums, the Scleroderma Webmaster's Association (SWA), and co-editor of the Voices of Scleroderma book series along with Judith Thompson Devlin.

I am also an ISN Webmaster, and an ISN Artist. My drawings, paintings, and photography illustrate many of the medical and patient stories on this site.

Go to Foster, Dr. C. Stephen
 
 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, Volunteer, or Donate.

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report or update any page content or links.

Toll Free US/Canada Scleroderma Hotline: 800-564-7099

 
The most important thing in the world to know about scleroderma is sclero.org!
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.
Copyright 1998-2015, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.