I'm thrilled with the fabulous team spirit of our international scleroderma community!
From our launch on January 21, 2002, the nonprofit International Scleroderma Network (ISN) has been blessed with dozens of highly talented virtual volunteers who lend their expertise and open their hearts to those affected by scleroderma and related illnesses, throughout the world.
The ISN is a fitting outgrowth of the SCLERO.ORG website that I launched on January 7, 1998. From one humble page of scleroderma links, it has blossomed to over 5,000 pages in 23 languages. This has been made possible with dozens of amazing worldwide volunteers.
The ISN is dedicated to empowering people who are interested in scleroderma, by tackling stellar global research, support, education and awareness for scleroderma and related illnesses.
Our trilogy, Voices of Scleroderma book series features over 100 unique patient and caregiver stories and articles by scleroderma experts, in five languages, from 16 countries, in every volume.
I'm Founder and President of the International Scleroderma Network (ISN), the SCLERO.ORG website, Sclero Forums, the Scleroderma Webmaster's Association (SWA), and co-editor of the Voices of Scleroderma book series along with Judith Thompson Devlin.
I am also an ISN Webmaster, and an ISN Artist. My drawings, paintings, and photography illustrate many of the medical and patient stories on this site.
Shelley Ensz in Memory of Patricia Ann Black
Diana Kramer is reading Voices of Scleroderma book series!
Keith and Rosalyn Miller in Memory of Patricia Ann Black
Brenda Miller is Raising Awareness!
Susan Moore in Memory of Louise Beeler
Daniel and Joann Pepper in Memory of Gayle Hedlin
Vickie Risner is Raising Scleroderma Awareness!
Nancy Smithberg in Memory of Gayle Hedlin
David and Carleen Waterman in Memory of Gene Wilkinson
United Way of Central New Mexico
United Way of Snohomish County
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, Volunteer, or Donate.
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.