[Skip to Content]
Organization Chart for the International Scleroderma Network

Profiles by Names

Profiles by Teams

Profiles
How to Volunteer
Position Descriptions
Profile Submission or Update Form
Board
Fundraising
Medical Advisory
Newsroom
Publishing
Support
Translators
Website

Shelley Ensz

Founder and President of the International Scleroderma Network
I wish I could say "Thank You" in 23 languages!

Shelley EnszI'm thrilled with the fabulous team spirit of our international scleroderma community!

From our launch on January 21, 2002, the nonprofit International Scleroderma Network (ISN) has been blessed with dozens of highly talented virtual volunteers who lend their expertise and open their hearts to those affected by scleroderma and related illnesses, throughout the world.

The ISN is a fitting outgrowth of the SCLERO.ORG website that I launched on January 7, 1998. From one humble page of scleroderma links, it has blossomed to over 5,000 pages in 23 languages. This has been made possible with dozens of amazing worldwide volunteers.

The ISN is dedicated to empowering people who are interested in scleroderma, by tackling stellar global research, support, education and awareness for scleroderma and related illnesses.

Our trilogy, Voices of Scleroderma book series features over 100 unique patient and caregiver stories and articles by scleroderma experts, in five languages, from 16 countries, in every volume.

I'm Founder and President of the International Scleroderma Network (ISN), the SCLERO.ORG website, Sclero Forums, the Scleroderma Webmaster's Association (SWA), and co-editor of the Voices of Scleroderma book series along with Judith Thompson Devlin.

I am also an ISN Webmaster, and an ISN Artist. My drawings, paintings, and photography illustrate many of the medical and patient stories on this site.

Contact Information

Please do not add me to unsolicited mailings or databases.
Email & Postal Mail
Phone

shelley-ensz@sclero.org

Shelley Ensz
International Scleroderma Network
7455 France Av S #266
Edina, MN 55435

Shelley Ensz
International Scleroderma Network
Toll Free: 1-800-564-7099
Direct: 1-952-831-3091 (U.S.)
(English-speaking only)

If you get the answering machine, please leave a complete message, including your country code if you are calling from outside the U.S.
 
Go to Foster, Dr. C. Stephen
 

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical   News   Sclero Forums   Support   Translations  Donate or Shop
Copyright 1998-2014, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.