Hi, I'm Serena Justis. You can call me by my nickname, Barefut. I have been an ISN Blogger in Sclero Forums since October 2007. I am honored to add Support Specialist to my responsibilities here at ISN, home of the most beautiful, caring, supportive, compassionate group of people I have ever had the privilege of knowing. If I can give even half of the support and comfort that I have received here then I will be doing great.
I am a forty-two-year-old single mom of two precious boys, ages five and ten (and a Golden Retriever age four). I have a BA in Sociology but I spent my working career in the hotel industry. I have been a stay at home mom for the past ten years but have recently gone back to work full time as a bank teller.
My first autoimmune symptoms began back in 1998 when my hair started falling out. I went to a dermatologist and he said since I was nursing my six month old, it was probably just a lack of vitamin K. Many more symptoms later and a positive ANA landed me with a "probable lupus " diagnosis. Then came Raynaud's in early 2005 and by October the same year, puffy hands and shortness of breath.
I was finally referred to a rheumatologist and in January 2006 I was diagnosed with diffuse systemic scleroderma, with skin, gastrointestinal, and lung involvement. I am being treated with CellCept® and have remained stable since February 2006.
I am very lucky to be living a relatively normal life, still able to do most everything I need and want to do (with a little help from my friends, family and neighbors).
You can read my blog by logging in to Sclero Forums, then selecting the Blog link in the upper right hand corner of each page. As a blogger, if I can make you smile then I have done my job. If I can make you laugh then I have done my job well.
As a Support Specialist I will steer members to reliable, up to date information, offer my ear to bend, my shoulder to cry on and my best advice based on my own education and experiences with life and scleroderma.
Due to a heavy schedule, I retired as ISN Sclero Forums Support Specialist in October 2008. This allows me to focus more of my volunteer energies on my ISN Barefut Impressions Blog.
My email address is [email protected]. Stay healthy, happy, safe and warm!
Health Hero: Kelly Pleas. Kelly faced the difficult diagnosis of diffuse systemic scleroderma-while going through a divorce and raising two young boys. There were decisions she had to make, and one critical step guided her in the right direction. Quality Health. May, 2011. (Also see Serena Justis)
Braden Pleas presented a 7th grade Culture Fair project on scleroderma yesterday at Chimacum Middle School in Chimacum, Washington. His board was then chosen to be one of ten to be displayed at the Jefferson County Library for two weeks! The left side of the board is titled, "What is Scleroderma?" with photos from ISN of Raynaud's and joint contractures. Then, "Five New Things I Learned." The middle is "Celebrities Working for a Cure" and the lower left section is on ISN and his interview with ISN Founder and President, Shelley Ensz, along with a pocket of ISN brochures. The center section is, "A Day in the Life of My Mom", where he graphed his mother's pain scale throughout a full day. The right side of the board is titled "Components of Culture". The ISN thanks Braden for educating the public and raising awareness of scleroderma! (Also see Scleroderma School Reports) Posted 1-25-11.
Serena Justis: ISN Sclero Forums Support Specialist. As a Support Specialist I will steer members to reliable, up to date information, offer my ear to bend, my shoulder to cry on and my best advice based on my own education and experiences with life and scleroderma. Posted 03-31-08.
Serena Justis: ISN Blogger. I am honored to be offered the opportunity to be a blogger here at ISN, home of the most beautiful, caring, supportive, compassionate group of people I have ever had the pleasure of knowing. I only hope my blogging can hold a candle to Barbs Lowe. If I can make you smile then I have done my job. If I can make you laugh then I have done my job well. Posted 10-30-07.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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