My name is Barbara (Barbs) Anne Lowe. I am an ISN Blogger for Sclero Forums. I live in Lancashire, England, and I have also served as an ISN Support Specialist.
I have suffered Limited Cutaneous Systemic Sclerosis for a number of years, and my story can be seen in the ISN's CREST story section. My story is also featured in the ISN's book, Voices of Scleroderma Volume 1,
I am forty-two years of age, married, and have a twelve-year-old daughter. I also run my own business.
I am interested in fundraising events that provide money for hospitals who carry out research for Raynaud's and scleroderma, and I'm always looking for new treatments, concerning ways of relief for sufferers.
My road to diagnosis was long and I endured many pitfalls along the way. In addition to scleroderma, I suffer from Raynaud's and, more recently, angina. I want sufferers to share their experiences. We all have a story to tell, whether it's asking for help or discussing our uncertainties. We are really not alone with this disease and although there is not yet a cure, we can all contribute in some way to the awareness of this complex disease.
If you have any questions regarding your diagnosis or just simply a friend to talk to. I will be happy to provide a listening ear and a shoulder to lean on.
You will find, by joining Sclero Forums, you will be welcomed by people who truly care.
On March 16, 2007, I gave a radio interview on Raynaud's on Chorley FM Radio. Now I have a 15 minute slot every friday (11am GMT UK time), promoting cooking at home.
My role as blogger is a rewarding experience for me. Please feel free to email me at [email protected] at anytime.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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