I'm retired, have a great husband, four two-legged children, and three four-legged ones. One grandchild so far! My family are all supportive, each in a different way. The baby's job title is "Stress Reliever."
I was diagnosed with Systemic Sclerosis sine Scleroderma in 2006. Because I have pulmonary fibrosis, pulmonary hypertension and live at high altitude, I use supplemental oxygen for the more strenuous activites. I also have gastrointestinal involvement, sicca syndrome,and Raynaud's.
Like many of us I had difficulty getting a diagnosis and once I did, even more difficulty finding out about the 'elephant in the room'. That's why I'm especially pleased to be able to volunteer to help with the ISN Newsroom. I'd like to help people have good access to the all latest information about scleroderma. While I don't have a medical background as such, I worked as a linguist for many years and love ferreting out information wherever it might be hiding. I hope I can find interesting and informative items for you.
In January 2009, I also became an ISN Sclero Forums Support Specialist. In February 2009, Carrie Maddoux was promoted to ISN Sclero Forums Director, and she began training me for the position of ISN Sclero Forums Manager. In March 2009, I was promoted to that position. In July 2010, I was promoted to ISN Director of Support Services, responsible for the development and management of worldwide community and online support groups. Please visit Sclero Forums for top notch scleroderma support, and let me know if you are interested in enhancing support resources for scleroderma in your area. (Also see:How to Volunteer)
In September 2011, I retired as ISN Sclero Forums Director and became ISN News Director. I have really enjoyed working as an ISN News Guide and I have witnessed firsthand how helpful the sclero.org site is in providing timely and easily accessible medical information for both patients and physicians.
In October 2011, I retired from ISN after returning from a month long trip to Australia. I felt a lot better being at a lower elevation, on vacation, and being off the computer, too, so we are looking at moving out of the mountains. I will really miss all my friends here but I am committed to doing the best I can to improve my health, as well.
Jeannie McClelland: ISN Director of Support Services. Jeannie has been promoted from ISN Sclero Forums Manager to ISN Director of Support Services. In this newly formed position she will be responsible for the development, training and management for all of ISN Support Services, including U.S. and worldwide support group and affiliate development, and for our online Sclero Forums, Chats, Blogs, and Videos. Posted 07-14-10. (Also see Sclero Forums)
Jeannie McClelland created a Sclero.org booth at the Denver Health Fair from 7am-12n on Saturday, April 10th. She says many people were intrigued by the size and scope of ISN services, including Sclero Forums Chats, Blogs and Videos. The location was the Denver Scottish Rite Consistory 1370 Grant St. Denver, Colorado. She presented materials on scleroderma and Raynaud's, and displayed the ISN's book series, Voices of Scleroderma! Posted 04/10/10.
Jeannie McClelland: ISN Sclero Forums Manager. Jeannie has been promoted from ISN Sclero Forums Support Specialist to ISN Sclero Forums Manager. Jeannie, who has also known as J.J. Knitter, has been training for this position for the past month. In this new position, she will be responsible for the management, development and training for Sclero Forums. Posted 03-16-09. (Also see Sclero Forums)
ISN Sclero Forums Support Specialist: Jeannie (JJ Knitter) McClelland. Like many of us I had difficulty getting a diagnosis and once I did, even more difficulty finding out about the 'elephant in the room'. That's why volunteered to help as an ISN Assistant News Guide, and now as an ISN Sclero Forums Support Specialist. Posted 01/22/09.
ISN Assistant News Guide: Jeannie (JJ Knitter) McClelland. Like many of us I had difficulty getting a diagnosis and once I did, even more difficulty finding out about the 'elephant in the room'. That's why I'm especially pleased to be able to volunteer to help with the ISN Newsroom. I'd like to help people have good access to the all latest information about scleroderma. Posted 12/09/08.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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