My name is Irene Miniati and I am a young medical doctor working as a rheumatologist with Professor Matucci Cerinic at the University of Florence in Italy. I work in the outpatient department, with a special interest in the care of scleroderma patients. I am a co-author, with Professor Matucci Cerinic, of the main medical article, "Systemic Sclerosis" in the ISN's book, Voices of Scleroderma Volume 3.
My principal field of interest is autologous stem cell transplantation in scleroderma, a treatment that has emerged in the last decade. In Florence we started this procedure three years ago, thanks also to the help that Professor Tyndall from Basel, Switzerland, has given to us.
I like to take part to the events and the activities that our local scleroderma patient association organizes. For this reason it is really a pleasure for me to be introduced in a network of scleroderma patients from all over the world. My email is [email protected]
Voices of Scleroderma Volume 3 has just been released, with 100 more new patient and caregiver stories! Contributing professionals include Dr. Marco Matucci-Cerinic and Dr. Irene Miniati (on Systemic Scleroderma), Dr. Fernanda Falcini (on Juvenile Scleroderma), Dr. Tafazzul e-Haque Mahmud, Dr. Laszlo Czirjak (on Scleroderma-Like Disorders), Francisco Castellanos, and Carol Langenfeld. Posted 01-24-06.
Dr. Irene Miniati: ISN Contributing Author for Voices of Scleroderma Volume 3. I am a young medical doctor working as a rheumatologist with Professor Matucci Cerinic at the University of Florence in Italy. My principal field of interest is autologous stem cell transplantation in scleroderma, a treatment that has emerged in the last decade. Posted 12-07-05.
ISN: Dr. Marco Matucci-Cerinic. Author of more than 200 scientific publications, he is considered a world thought leader in scleroderma, angiogenesis and Raynaud's phenomenon. He is a long-standing member of the ISN Medical Advisory Board, and the featured expert in ISN's forthcoming book, Voices of Scleroderma Volume 3. New page, Posted 09-01-05.
(Italiano) ISN: Italian Version features over 100 pages of top quality scleroderma medical and support information, including over 70 patient and caregiver stories to explain what it is really like to live with scleroderma. ISN.
ISN Liaison to Medical Advisory Board
Medical Advisory Board Members
|Foster, C. Stephen||U.S.|
|Van den Hoogen, Frank*||Netherlands|
|* = Need ISN Profile Submitted|
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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