Hi, I'm Heidi Nolan. After many years, I have retired as Manager of the ISN's Sclero Forums. I am also on extended leave as an ISN Support Specialist right now.
I have been diagnosed with Undifferentiated Connective Tissue Disease and my story can be found at Heidi: Difficult Diagnosis of UCTD.
I am forty-one years old and married with three step-children and two grandchildren (a three- and a four-year old). I am a retired university professor. My degree is in clinical psychology with a specialization in children and adolescents and I conducted research investigating anxiety disorders in youth. I taught classes in abnormal psychology, child therapy, and child psychopathology and I worked with graduate students, teaching them how to become competent therapists.
The smartest thing I ever did with regard to my disease is join this online support group, and I hope you will find that to be true for yourself as well. This is a truly caring group of people who all want to give one another as much support and help as possible.
My personal story is featured on page 236 in the ISN's book, Voices of Scleroderma Volume 2. This book series is a valuable way of providing much-needed medical and support information to patients and caregivers, for scleroderma and related illnesses.
I have really enjoyed getting to know each of you in my role as a support specialist and hope that you will find the same comfort and support in this board that I have. Please feel free to e-mail me at [email protected] anytime.
The International Scleroderma Network thanks Heidi Nolan for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-07-06. (Also see ISN: Comprehensive Donors)
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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