I live in Escondido, California, which is near San Diego. I am fifty-five years old. My hobbies are gardening, rebuilding old pneumatic player pianos, reading, and taking care of my dachshund, Sadie. I've always loved to take just about anything apart and, with luck, fix them. The same curiosity seems to apply to things medical, since I must know how things work.
I worked for many years for the Zoological Society of San Diego as Director of Food Service and as a financial analyst at the San Diego Wild Animal Park. I have a BA in philosophy and a BA in economics, both from San Diego State University.
My first symptoms of scleroderma started in 1977, when I was twenty-two. The main problem was Raynaud's with some ulceration. Not long after this, my father experienced kidney failure and lung problems which eventually led to a diagnosis of scleroderma. For the past 20 or 30 years he had “cold hands” and would carry around hand warmers that looked like big cigarette lighters. He also had stomach problems that he thought were caused by a hiatal hernia. Were it not for my father's diagnosis, I probably would have gone undiagnosed for a decade or two. The diagnosis was CREST or slow-onset scleroderma.
This was relatively easy to cope with until 2002, when I developed Burkitt's lymphoma, one of the fastest growing of all human cancers. This was treated with several rounds of chemotherapy and a stem cell transplant. After this treatment everything got worse. Episodes of fatigue, pulmonary hypertension, secondary Sjogren's syndrome and peripheral neuropathy in my feet made things much more difficult.
I also had a complete right hip replacement for an avascular necrosis, thought to have been brought on by prednisone therapy. It is unusual that I have a familial connection (possibly hereditary), since my father had the disease, and it only effects the males in my family (no autoimmune disease among my mother and two sisters). A few years ago I became more interested in finding out more and meeting others with the disease, so I joined the ISN.
In loving memory of Craig Roothoff, a donation has been made by Shelley Ensz to the nonprofit International Scleroderma Network. Craig generously volunteered as an ISN Assistant News Guide for Autoimmune News from 2010 to 2012. He passed away on January 19, 2015, just shy of his 60th birthday. His memorial service will be in Rancho Bernado on February 2, 2015. (Also see Sclero Shop/Donate and ISN: Craig Roothoff) Posted 12/22/2015.
Craig Roothoff: ISN Assistant News Guide. I worked for many years for the Zoological Society of San Diego as Director of Food Service and as a financial analyst at the San Diego Wild Animal Park. I have a BA in philosophy and a BA in economics, both from San Diego State University. A few years ago I became more interested in finding out more and meeting others with the disease, so I joined the ISN. In this position I will be finding the latest abstracts on autoimmune news for the main sclero.org site, and also posting the articles to Sclero Forums. Posted 8-12-10.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Cindy Dorio, Shelley Ensz, Margaret Hollywood, and Michele Maxson.
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