Hello, my name is Patty Sandoval Sralla. In 2003-2004, I served as ISN Newsletter Coordinator. I am delighted to return now as ISN Insider Newsletter Manager.
I also wrote press releases for the ISN's wonderful Voices of Scleroderma book series.
I'm a former newspaper editor with more than fifteen years experience in daily newspapers. My most recent job was at The Oakland Press in Pontiac, Michigan. I was there for almost eight years. Prior to that I worked at a smaller paper in South Texas, where I was born and raised.
I've always been an avid volunteer, working with organizations such as Big Brothers-Big Sisters and my local church teaching social justice issues to middle school kids. I was on the go all the time. That all came to a screeching halt when I was diagnosed with pulmonary hypertension (PH).
This wasn't my first bout with an illness. As a child, I had linear scleroderma that significantly deformed my left thumb. But I was lucky. The disease didn't internalize and went into remission when I was about twelve. Things were fine for more than thirty years. I went to college, married, and had two healthy boys. I now have a band,Patty and The Mockingbirds. We play in clubs in the San Antonio, Texas area.
Then about three years ago, I started to feel short of breath, especially with exercise. Then came the PH diagnosis. I quit my stress-filled job and decided to focus on getting well. I decided to do some investigating and, of course, came directly to the ISN website.
I remembered reading about PH being related to scleroderma and I was relieved to read that PH wasn't the death sentence so many other sites proclaimed. Though my doctors don't think it's related because linear scleroderma isn't supposed to internalize, I know how wacky this illness is so I like to keep informed about current medical news.
Patty Sralla: ISN Insider Newsletter Manager. In 2003-2004, I served as ISN Newsletter Coordinator. I am delighted to return now as ISN Insider Newsletter Manager.Posted 09-13-06.
Patty Sralla: ISN PR for Voices of Scleroderma Book Series. I am writing press releases for the ISN's wonderful Voices of Scleroderma book series. In the past, I have served as the Newsletter Coordinator for the ISN Insider Newsletter for members. Posted 02-04-06.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
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